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Reply by MarkLaBoss

Hi Jessica, Marcus sees a team over in the EGID Clinic on the main campus of Boston Children's. His doctor is Dr. Ngo and his allergist...

Reply by Jessica

Hi! We were referred to Boston children's and i was not all that happy with the doctor we saw, as every question I asked he said to come...

Reply by FPIESinMI

Hi there, We are not too far from you and see someone in Ann Arbor. U of M allergy has some great FPIES docs who also have nutritionist...

Reply by MarkLaBoss

Sorry to hear about your struggles Melissa. FPIES is so rare that alot of pediatricians don't know about it. We have received some crazy...

Reply by Jess

Well, I'm one state too far from you (WI). Hopefully, someone from Michigan sees your post and can give you a personal reference. This...

Reply by Emmy

Hi Murphy, If it turns out he has MCAS don't stress too hard (like I did), its apparently a lot more common than they originally thought...

Reply by MarkLaBoss

Also Murphy mentioned histamines in food. The doctor today mention that ground turkey may have more histamines than regular turkey meat...

Reply by MarkLaBoss

Hi Emmy et al., To my knowledge MCAS (mast cell activation syndrome) & MCAD (mast cell activation disorder) are the same or at least...

Reply by Murphy

The only process food he eats is gorilla munch and simply Tostitos plus chick pea and chickpea/red lentil pasta. He eats strawberries...

Reply by Ameador1

We totally do beans! White and black beans - never canned, I cook them. I usually soak them for one or two days first and then cook them...

Reply by Murphy

I wish we could explore a low histamine diet but my oldest only has 12 foods that are safe and without beans he would have no protein...

Reply by Ameador1

Out youngest displays histamine issues predominately (we haven’t tested yet for MCAS), but displays FPIES symptoms to corn, wuite...

Reply by Murphy

My boys 5 and 2 shows signs of histamine dumping issues but I have not made headway with doctors on it and it is in frequent though for...

Reply by Emmy

Hello Mark, Sorry to hear about your son. Can you please expand on exactly what MCAS is? Our daughter is 2.5 and still has FPIES to egg,...

Reply by Jess

I second the advice on cooking with olive oil- my son reacts to almost everything and that has been safe. My son refused to eat...

Reply by MarkLaBoss

Oh! It wasn't in a store. We Amazon almost everything from 100% coconut milk w/ no additives to organic prune packs to elecare junior.

Reply by Franny

You guys are lucky, I haven't been able to find this basic product in my stores. . . Hello Amazon!

Reply by MarkLaBoss

Sunbutter (from sunbutter.com) has this for ingredients: roasted sunflower seed, sugar and salt which is why we were so eager to try it.

Reply by FPIESinMI

Hi there! Thanks for your response! Ours both reacted to baby oatmeal after multiple exposures when mixed with breast milk. We cut them...

Reply by Franny

I reassure you that you are right . I have realized that the additives are the contaminates for many of products our little one reacts...

Reply by Franny

We didn't sleep through the night until well after a year and many tears from sleep deprivation on our end as well. . . Every night up...

Reply by Franny

I have three and only one is FPIES stricken. When you say "Oats" do you mean straight Oats or pre-concocted oatmeal products? I use to...

Reply by FPIESinMI

Our allergist told us to not sleep train if they were nursing at night (both were). He was adamant that with the extra food allergy...

Reply by MarkLaBoss

Sleep was difficult for our son. His gut was hurting him all the time and we didn't really figure out the bulk of his triggers till he...

Reply by MarkLaBoss

We just trailed sunflower oil to cook with as coconut oil has been smoking our house in the oven. Our son Marcus did fine with it. We...

Reply by hrenee1987

Anyone in the Denver, CO area? My 8 month old was recently diagnosed with FPIES and we could use some support from others who are going...

Reply by JJ Ohio

I use Seeking Health infant probiotic (powder). It's worked really well for her and is free from many of the top allergens.

Reply by Sheila

http://www.vegankitchn.com/201...uten-free-bread.html Try this recipe...easy, especially if you have an immersion blender. I made it...

Reply by The FPIES Foundation

Thank you so very much for sharing this post LaBossiere family!! This means more than words can sufficiently express. This is such a...
The FPIES Foundation

Reply by Murphy

We use Norwex. Most of the Norwex clothes are just water. We used to use vinegar but my younger son is allergic to corn! It takes some...

Reply by FPIESMOMD

Did you introduce it very slowly?Like only a pinch of the powder and work your way up? Also, there is one with added fiber it in. You...

Reply by EC1003

Hi My allergist also suggested culterelle as he said probiotics can help with kids with fpies. However, it gave her severe diahhrea...

Reply by FPIESMOMD

My son was fpies to milk/soy from birth. He is now 5 and fpies free. He failed a milk food challenge at 3 and then I introduced...

Reply by Murphy

My oldest was safe with baby life probiotic powder but it has maltodexterin which is a form of corn and it was not safe for my youngest.
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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