Tagged With "Trial"

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Re: How much do you start with on a trial?

My Little Man ·
I love this discussion thread because this is certainly a hot topic- I think it is even a hot topic in the research world as a research immunologist has told me that they are looking that there may be two types of FPIES (within FPIES), and this paper (listed below) talks about how it is a spectrum. So it really could be happening both ways- it just leads more to the individuality of this disease and how much you need to know your child's patterns of symptoms (it really is all about momma...
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Re: How much do you start with on a trial?

My Little Man ·
As for us, although we haven't gotten very far in too many food trials (passes I mean)- my little man has much more of the chronic FPIES symptoms- and "builds" reactions....although he had acute reactions to dairy and we've never tried a whole dairy protein with him. His reactions to corn were a chronic course. I have heard of families utilizing that when they are trialing- to trial a food for a few days and if there are any symptoms of concern to just stop the trial and pause and then...
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Re: How much do you start with on a trial?

Zookeeper ·
I am not sure if the delay was the cause for us or not, but we have failed a past safe food after a break. Samaya had been safe with avocados and I had tried like crazy to keep them a regular part of her diet because they are so good for you. They were an early pass, but I know they had been safe for months. Then I got frustrated because I kept buying rotten avocados from our grocer and gave up for a month or so. Upon re-introduction they were a HUGE fail with some of the foulest diapers I...
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Re: How much do you start with on a trial?

AmandaB ·
And does anyone know the theory behind trialing with small amounts and ramping it up? Is it that they won't have as severe of a reaction if there is less of the offending food ingested? Just curious, b/c my LO always reacts on day 5, so by then he'd be ingesting ~2 Tbsp...
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Re: How much do you start with on a trial?

kendall ·
I'm a bad example, I'm sure! We've always just "gone for it" and let her eat what she will of the food we were trialing. For the longest time Kara only had rice, oat, dairy and soy reactions. Now, things are a mess with her having very delayed reactions and way down the road from when we had previously thought she had passed them. My fault for not trialing long enough, I'm sure but when her first few fails were upon the first serving of the food (and the extreme lack of knowledge and...
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Re: How much do you start with on a trial?

music_rxmama ·
Love the discussion-- this is always such an interesting topic. As for why most people seem to start small and build up. . .I think there are different reasons. I know we have been told that there is a theory about smaller amounts to start making a reaction smaller, but I think that is so dependent on each kiddo. B has had her most severe reactions to the tiniest amounts of food. But we have only "gone for it" with a couple of foods--- arrowroot starch and raspberries (After a very...
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Re: How much do you start with on a trial?

smileybabymama ·
I think what's also interesting is not only the quantity of food given, but reintroducing the food after a few days. My DD did well with both soy and chicken for 2 weeks. When I stopped them both (at different times of course) and reintroduced 4 days later, is when her reaction occurred. So, to your point above, we've seemed to experience this continuation of the food in order to build a tolerance
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Re: How much do you start with on a trial?

AmandaB ·
OK, that's really interesting SmileyBabyMama. B/C as pure coincidence, my LO reacted to rice and peas (the first foods he ever had) on the 5th ingestion, which also happened to be after a 2-5 day break (my husband was away on business in Taiwan, and since the LO wasn't eating well yet I just didn't want to fight that battle alone). We've always wondered if it was that it was the 5th ingestion or the break that prompted the reaction. We even built a break into our carrot trial to see. When we...
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Re: How much do you start with on a trial?

AmandaB ·
...after rereading it may have been confusing above....we trialed rice first, had our reaction, then trialed peas after a recovery period, and had another reaction.
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Re: How much do you start with on a trial?

mom2cj/ac ·
When we started DD on rice at 6 months there were big gaps in her first food trial because she was developing a cough at the same time. She had a classic FPIES reaction on her 5th and 6th days of her rice trial. With all of this talk about taking breaks during food trials, I'm wondering if taking a break makes a child react to a food when they wouldn't have done so if there were no break. Also, does feeding too much of a food at one time do the same thing (instead of going slowly and...
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Re: How much do you start with on a trial?

beth ·
This is all really good info! My little man is 5 months so we are just starting to trial foods too. He also reacts about 5-7 days after a food has been introduced. I have been doing small amounts of a new food and building up each day. When I first started rice I went for the "go for" it method because I just needed to know if he was going to react or not. I regret doing it that way because he actually became very backed up. I pulled it for a week and am trying again slowly, like I did with...
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Re: How much do you start with on a trial?

Jill ·
HI!! We actually start with 1 teaspoon of a food. If no signs or symptoms of a reaction, we move to 2 tsp the following day. If only minor symptoms show, we usually try one more day. But, personally, if there are any painful symptoms (screaming 2hrs post ingestion, raw bottom etc), we just pull it. I don't feel it's worth pushing through the pain. When we add a safe food, it's TOTALLY safe....Hope this helps!! Good luck with the new trial!!
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Re: How much do you start with on a trial?

Jill ·
Sorry, I should add that we continue adding a tsp a day if no symptoms appear until we get to a decent size amount (full serving). Our trials usually go about 6-7 days before we will call a food a pass, as we have seen symptoms only appear on day 4.
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Re: How much do you start with on a trial?

AmandaB ·
Thanks, Jill! Our symptoms always show up on day 5 - so it sounds like we're in the same boat for the watch and wait Our allergist thought that 5 days was pretty delayed, she had only seen 1-2 day delays before Matthew. So she suggested that we trial for 3 weeks...but that's SO long and this little guy is HUNGRY! We decided to stick to a 2 week trial and see how it goes... I will say that just the look of the broccoli has my stomach in knots b/c the last green food (peas) was a fail I guess...
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Re: Coconut ice cream!!!

music_rxmama ·
I love ice cream trials. They are truly the best. The kids look at you like "really?!" I hope that this remains a fun and successful trial!! My B will eat a bowl of coconut ice cream in solidarity for your B tomorrow!
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Re: Coconut ice cream!!!

Jill ·
Yes! We are using the Larry and Luna's!!
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Re: Coconut ice cream!!!

Zookeeper ·
We do the So Delicious brand. It is super tasty. Samaya likes the chocolate, but I have a soft spot for the Cherry Amaretto!
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Re: Coconut ice cream!!!

smileybabymama ·
that's great news. curious, are you using luna and larry's brand coconut ice cream or are you making it yourself?
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Re: Coconut ice cream!!!

AmandaB ·
I was thinking about starting a coconut trial on Matthew's 1st birthday with coconut sorbet...he doesn't react until day 4 or 5, so at least he'd get to enjoy it on his birthday! So glad this is working for you
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How much do you start with on a trial?

AmandaB ·
We're starting broccoli today...the allergist didn't really say what amount to give my LO at first.  The doctor in the Good Morning America segment mentioned 1 Tbsp for trials...is that what everyone does?  I've also seen some of you say...
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Coconut ice cream!!!

Jill ·
So far so good with coconut! And the best part about the whole trial, is that we are using ICE CREAM! Yum!!!  I have one happy girl! =)
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6-month-old recently diagnosed

Jennifer Giambi ·
Hi all! My 6-month-old son Gus was recently diagnosed as FPIES to rice, as well as having a positive IgE reaction to eggs. We are in the process of trialing foods. I was wondering if anyone could help us come up with a food plan of action. His safe foods are below: carrots sweet potatoes apples bananas pears avocado peas Squash - in the process of testing. He loves to eat and we would like to make sure he continues to grow and get all the nutrients he needs. Any help would be great! Edit: He...
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