Tagged With "reaction"

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Re: Reaction to Fish Oil in my Milk?

music_rxmama ·
Ugh, so sorry for the rough night!!! I personally have not experienced this, but I do know that B has reacted to some crazy small amounts of things in my milk. And with FPIES, you know the drill-- it is possible. Is there any chance there is anything added to the fish oil or is it potentially contaminated with one of his known triggers? I am sorry-- I wish it was easier. Why can't there be a litmus test for these questions?! Please KUP and I hope your little guy is feeling better very soon!
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Re: Reaction to Fish Oil in my Milk?

AmandaB ·
Well, doesn't look like it was the fish oil after all...gotta love the mystery reactions But I'll take this over the roller coaster a lot of the formula babies dealt with at such a young age...so glad I am able to EBF, even though I REALLY miss rice!
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Re: Reaction to Elecare?

AmandaB ·
I know that taking a break from a food can intensify the reaction - I know I've seen it in more than one place, but this is the first one I found that references a break: "The disease presents in two phases: the initial presentation is that of a chronic disease while the antigen is being ingested. This can be followed by an acute phase if the antigen is removed from the diet and subsequently re-ingested, with symptoms occurring about two hours after ingestion. In a young child, the...
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Re: Reaction to Elecare?

RadN4 ·
Amanda, you are on top of things this morning, answered my post in both spots!! I am really starting to think it is from the reintorduction. We are supposed to get our Vanilla Elecare today, so I will try that and see what happens. Hopefully there will be no issue, but my instinct says otherwise.
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Re: Reaction to Elecare?

Janinne ·
So sorry for you and for Carter. Nika seemed to have a very similar to Neocate last spring. Our GI dr gave us Neocate, Elecare, And Elecare vanilla to trial. I mixed 20% formula with 80% breast milk on a number of occasions, a few days or weeks apart, while I was working part-time last spring. It was a struggle to get her to drink the bottles and she seemed to react to all of them by waking in the middle of the night in pain, unable to sleep, and having difficult middle of the night poops.
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Re: Reaction to Elecare?

Nubs ·
I understand what you guys are going trough, my daughter wasn't able to tolerate any formula, we even had to take her off the breast, at that time we didn't know what was wrong with her, just the fact that she was in pain and had blood in her poop, so the GI doc pit her on something diferent, when she was 10 months I tried to give her Elecare and she vomited all the bottle so we kept giving her what my GI told me about something that is not formula but it has all the nutrients and vitamins I...
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Re: Reaction to Elecare?

Janinne ·
RadN4, did the new Elecare contain dha/ara, that the original one did not? I read about it last spring and saw that the neonate had dha added in and thought that may have been the problem. I just ordered Elecare for infants to try again and it looks like they just started adding it in there, too. Just a thought...
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Re: Reaction to Elecare?

RadN4 ·
Thanks everyone! The elecare was the old one without the dha. I informed his allergist and also told her I would not be comfortable giving him elecare again at home. If she wants us to try again, it needs to be in the hospital. We are still suffering from the 2 ozs 4 days later.
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Re: Mystery reaction or...

My Little Man ·
Keep forgetting to ask you Jill, how is she doing with those symptoms? Did you restart Coconut??
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Re: Mystery reaction or...

Jill ·
YES! We can *almost* officially call coconut a pass!!!!! I'm pretty sure it's teething. She is drooling like crazy and chewing on her hands. YAYAYAYYAYA coconut!!!
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Re: A word on Shock

Janinne ·
I am very sorry to hear that you have been having to watch your little Sam go through all of this. How scary! We have seen color changes, rapid breathing, and clamminess but not necessarily related to reactions to foods. I am trying to make some sense of it all. I hope Sam is feeling better very soon, and that you get some much needed answers from all of this.
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Re: A word on Shock

My Little Man ·
You know, I think I worded some of this wrong (sorry- my brain isn't on full function mode from a week at the hospital); but the symptoms I am referring to are from the sepsis- the sepsis then causes the shock when it becomes overwhelming to the body; and then from there - there are degrees of shock. The medical journal articles refer in places to it as sepsis-like shock in that it acts the same way it would such as we saw it for Sam last week-- from an infection. FPIES is the body treating...
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Re: A word on Shock

beth ·
Im so glad he is doing well! I hope you get to go home soon! Those long hospital stays are rough! (sorry I have no info on shock)
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Re: Mystery reaction or...

music_rxmama ·
Does she have a history of big delays in reactions? I might go with her history-- if she is prone to delays, maybe wait another day and see? If not, maybe watch it a little bit more closely and then move forward without increasing her serving? Again, like everyone always says, go with your gut. For my B, I might suspect teething or a crumb, based mostly on her age (molars coming in maybe? creating extra drool at night when sleeping?) but again, you have to go with your B's history--- what...
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Re: Mystery reaction or...

Jill ·
Thanks Amanda!! She has not had reactions this delayed before, that's why I was really considering it being possibly a crumb or teething! I'll let you know how the night goes! Hopefully good, because I'm TIIIRRRRED.
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Re: A word on Shock

RadN4 ·
Carter and Sam have very similar reaction patterns. We see many early signs of shock way before vomitting starts. Sometimes there is no vomit at all. One of the last big reactions we had was to insect repellent placed on his skin. It wasn't that he ingested. We always start with lose of color in his face and lips. Then we get cold sweats, clammy, rapid breathing, elevated heart rate and lethargy. These come in different order and sometimes we don't get them all but it makes sense that we are...
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Re: Behaviors in toddlers with reactions?

VR ·
Hi! My son is 18 months old and fpies/protein intolerant to lots and lots of foods. We have noticed some behavioral changes but nothing quite as drastic as that. We will have major sleep disruptions and very very cranky behavior. We have pulled foods when those are the only symtoms. With that said, I have spoke to other mom's who describe similar situations to what you are going through. Sounds like a good idea to pull the dairy.. especially with the vomiting.
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Re: Behaviors in toddlers with reactions?

klucas ·
My son has similar meltdowns when he is reacting to food. He is a complete mess and overreacts to everything (He is 17th months). I'm finally realizing that it's because he is in pain. One of our biggest indicators that a food trial is not going well is his constant night-waking. I'd pull the dairy out and try again in 6 months.
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Re: Behaviors in toddlers with reactions?

Salwa ·
Hi my son is 3 and 8 months. When ever he has eaten a trigger he will vomit profusely become very sleepy and pale, sometimes he will faint. After all these initial reactions have settled he will become very agitated, won't sleep the night and cry for hours on end. We found out much latter on that the food triggers pain, strong pain. Perhaps your little one is experiencing done degree of pain. All you can really do is to avoid dairy completely. I only give my son the trigger foods when in...
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Re: Behaviors in toddlers with reactions?

Elisa Graham ·
My daughter is now 3 had fpies and allergies to milk soy egg. She will eat dairy and within 4 hrs after become do aggressive adjitated angry itchy it's beyond a joke I don't know where my lil girl goes some days it's horrible 9 weeks in to normal food she has had an fpies reaction
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Re: FPIES Book for Children?

VR ·
I don't know about any books about FPIES but my kids GI wrote a children's book about eoe and it talks about food trials and scopes and hospital stays. It's called 'Eating Isn't Always Easy' by Dr. Yuan. http://www.amazon.com/Eating-I...411478939&sr=1-1
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Mild Reaction or Something Else?

Kris10 ·
Hi. My now 11 month old son started chronic reactions to cow's milk and soy proteins at around 2 weeks old (blood and mucous in stool, reflux and vomiting). Neither Nutramigen nor Alimentum relieved his symptoms, but Elecare has worked well for him. At 7 months old, I added an ounce of Similac Advance to his morning bottle (huge mistake) to see if perhaps he'd outgrown his intolerance. Three hours later he began vomiting about every ten minutes for about two hours, and about two hours after...
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
I have 2 with completely different diets. one can eat only rice and the other only wheat. I have found most of it lies with the grains or roots. But my first diagnosed with rice, corn, oats, soy, apples, bananas, white potatoes, carrots, peaches. The other didn't have problems for years except with corn. Its scary, but once you find a safe food try expanding to others similar like butternut squash to other squashes. It can help with a bit of variety. Same goes for other reactions. If your...
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
My 14 month old also has Fpies to rice and oats.....I was wondering what type of a diet does your child have? Are they able to eat noodles since they are made with wheat flour? I'm too scared to do a trial with it!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
it took a long time for me to try any of it. I wanted to be sure to find a company that didn't cross contaminate. I use Davinci pasta http://www.davincipasta.com/ for testing wheat. She just eats it with land o lakes butter and salt. I trial it one tiny bite at a time over 6-8 weeks. That's what the gastro dr rec. and then I also found that not stopping an item is good too. I stopped peanut butter once and then she reacted to it. Not sure why but haven't been brave enough to try it again.
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
Thanks for the info! My daughter can eat pretty much anything that doesn't contain rice, rice flour, oats, and any other type of flour. I've just avoided all foods with flour because I'm afraid that she will react to all wheats. Thankfully she loves meat and vegetables!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
Sorry, the diet for one of mine is fresh fruits like strawberries, blueberries, cherries, pears, oranges; veggies like sweet potatoes, peas, green beans, butternut squash, zucchini, yellow squash, acorn squash, broccoli, lettuce, tomatoes; and some meats like oscar meyer bacon, certain brands of ham, chicken without added solutions, beef. We only use Promise land milk, salted sweet cream land o lakes butter, cheeses, minute made OJ with calcium and D, Poly vi sol vitamins. want any more...
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Re: Cleaning Supplies

C-R ·
some things you can clean with is peroxide or alcohol wipes instead of lysol
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Re: Fpies reaction?

Christy ·
She was diagnosed with fpies. She throws up after dairy, soy, and lactose. She also gets diarrhea and severe reflux from all other foods but grass-fed beef, coconut milk, broccoli, and grapes. Her blood test and skin tests were all negative except to corn and tree-nuts. Which caused her to get chronic diarrhea to elecare and neocate. I don't know what to do!!! She has been to the Children's Hospital in LR where she was admitted for a week, they sent us home saying keep her on elecare till...
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Re: Fpies reaction?

Christy ·
She also throws up to all grains but rice which gives her diarrhea
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Re: Fpies reaction?

Leanne ·
This is not an FPIES reaction
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A word on Shock

My Little Man ·
I know this is a scary topic, I don't mean to be bringing up scary things.  However, as I'm learning more (via recent labs taken before/during reactions due to Sam having a PICC line) as well as seeing his body go through full septic shock from...
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FPIES Book for Children?

The FPIES Foundation ·
A Family asks: "My daughter has a food challenge coming up and we are trying to prepare her by discussing what to expect. We have found a couple children's books discussing hospital stays, however I was wondering if you know of any books dealing with...
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If a Sibling has FPIES, will it be to the same foods?

The FPIES Foundation ·
A family asks:   "My 2 year old has fpies to rice and oats. It is not an official diagnosis since her pedi hadn't even heard of it until I brought some info to her but she has text book fpies reactions to rice and oats. We never sought an...
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Behaviors in toddlers with reactions?

KevinsMommy ·
Hi Fpies families!I was curious as to whether any of you notice any behavior patterns when your child is reacting to something.  When we first introduced dairy again, my son was off the wall and showed some strange obsessive behaviors.  For...
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Cleaning Supplies

music_rxmama ·
So we always create posts about reactions and trials and all of the other important areas, but I never see any posts about everyone's tried and true methods of cleaning up after a reaction? What works for everyone? Also, are there any special cleaning...
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Fpies reaction?

Christy ·
Last night my daughter had a reaction that she gets often. She had heart palpitations that I could feel by putting my hand anywhere on her. The only other symptoms were that she was very hot with red skin and extremely miserable with stomach cramping. Does this happen in fpies with no vomiting or dirrehea? Is this damaging her heart or other organs?
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Mystery reaction or...

Jill ·
Brynn had coconut for the first time on Wednesday.  None Thursday or Friday. Last night she was up from 3-4:30am and woke up with a rash around her mouth? I have never seen that rash before by her mouth.  I have no clue what is going on?...
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Reaction to Elecare?

RadN4 ·
I finally got Carter to drink some unflavored Elecare last night. He usually drinks the Vanilla, but we have been out for almost 2 weeks. He probaly only had a couple ounces of the formula, I made it in a smoothie for him. Exactly 3 hours later,...
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Reaction to Fish Oil in my Milk?

AmandaB ·
Hey, has anyone had their kid react to fish oil through their milk?  Just curious...Matthew threw up a bunch last night...nothing new in his diet but I did remember to take my fish oil (I'm not the best at remembering to take it), so that's the...
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Reactions change as they grow?

The FPIES Foundation ·
A parent asks: "How have other children's reactions changed as they have gotten older? I have bee up all night as she awake suddenly from sleep around 4 hours after eating [ accidental ingestion of known trigger food ] and has a very wet cough. Keeping a night vigil as I am so afraid she will stop breathing again. (Happened after severe shock when she was first introduced to sweet potatoes after violent vomiting)"
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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