Tagged With "food"

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Re: Refusing to Eat :(

Zookeeper ·
My best suggestion is to remember that eating is more for practice at this age. Trying not making it about eating for a few weeks. Just give it to him, let him play, make it fun, get messy, eat in front of him, but just to do it, don't encourage him. Eventually, he will take a little nibble again. He will see right through all of your attempts to trick him and just become even more obstainant. Just pretend that it isn't a big deal to eat and maybe he will come around. Hang in there mama! I...
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Re: Refusing to Eat :(

RadN4 ·
I completely agree. We used to ignore Carter while he was sitting in the highchair with his food, when he hwss refusing food. If we paid attention to him, he would refuse to touch anything we put in front of him. But if I put him in his chair with some food while I empited the dishwasher or folded clothes, he was much more likely to take a nibble or two. It's frustrating, but its all part of the game. Good luck!
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Re: How to Explain FPIES?

My Little Man ·
I saw it is a severe food allergy of the gut- ana of the gut (as previous poster said)...and then I consider the audience too...many people are familiar with how sensitive a person with celiac disease is to gluten- I say it is like that but to more than wheat. Also, I remember what Janice Vickerstaff Joneja said about how she, in the 70's- with her child having multiple IgE allergies that were NOT YET DEFINED related to FOOD approached it...she actually worked WITH the man who patented IgE...
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Re: How to Explain FPIES?

Jill ·
Yeah, I basically just say it's a severe food allergy of the gut. If they ask more questions or appear to want to know more, I get into a few more details about the type of reactions. I mostly leave it at that. If people ask more questions, I give more info though!
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Re: How to Explain FPIES?

Mommy to Thomas ·
One of the websites I've read about FPIES calls it "anaphalaxis of the gut." So when I've explained it to people, it's like a reaction that some people have to peanuts, except instead of their airway closing, getting hives, and their breathing going crazy, everything happens in the GI tract. It's worked for some people. And depending on how interested they are on what happens to my son, I tactfully try to say it's not a pretty sight because it makes him violently sick "on both ends, if you...
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Re: How to Explain FPIES?

music_rxmama ·
I know exactly what you mean, Amanda!!! I struggled with this for a long time as well and I still struggle from time to time but here is what I found helpful. I consider my audience. Is this someone who is asking because they really want to learn more and want to really know how to help my child or is it someone I am telling so that my child is protected? Is it someone I am having a casual conversation with (maybe they asked why your LO isn't eating food X like their little Joey, etc)? Then...
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Re: FPIES Food Survey

My Little Man ·
Thank you for posting this Amanda!! I know so many families have benefited from the list of multiple foods TO trial! The post that was started on babycenter (where I know you pulled some of this very useful information from) has been a hit for months as well. We've had interesting discussions in other forums about the relations of foods that are fails. Anyone have any thoughts on this in your child? Random relation or have you been able to connect the foods somehow?
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Re: FPIES?

Zookeeper ·
Hi! And welcome to the group! I am glad you have found us, but sorry you have to be here. It is so hard to watch our little ones struggle. What you are describing sounds very much like a classic FPIES reaction to rice. The other issues you are having with your little guy being reactive to things in your milk can also be pretty common to FPIES. It sounds like you have some great support from a good allergist. I would suggest taking some articles to the allergist and/or GI and see what they...
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Re: FPIES?

DSmyWorld ·
Thank you! We actually have not been to an allergist yet because I thought my son's GERD and allergies were under control after seeing the GI, but I guess I was wrong and am now convinced that FPIES is also an issue. I actually don't think we ever reached a baseline and that could by why he is still spiting up/vomiting a few hours after every feeding (I was told that might not go completely away, so I guess I over looked it). The rice was by far the worse reaction, with puddles and puddles...
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Re: New Food Passes or Fails for the Survey?

My Little Man ·
http://thefpiesfoundation.hoop...t/243919768640323172
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Re: New Food Passes or Fails for the Survey?

Erin ·
The next time you update... KL (from NY) passed white potatoes, red potatoes, broccoli and failed banana.
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Re: How to Explain FPIES?

EllieBelly ·
Boy can I relate to this. It is irritating when you say 'allergy' and then they make it seem like no big deal, right? I decided early on that I would use that to my advantage, and yes, consider my audience, but sometimes have a little fun. I mean if they really dont care to know what FPIES is and are not going to remember anyways, then who cares? Sometimes I say things like "She has a severe immune system disease"...and then wait for their concerned look to say "Dont worry she isnt...
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Re: How to Explain FPIES?

Jill ·
Haha!! Yeah I have to admit, when we first told our families, we MAY have made it been a little bit drastic. I wanted to get my point across though...NO feeding her unless MY HUBBY AND I say it is ok. I told them about the ER letter and that we were directed to immediately go to the ER if she starts to vomit and daycare was instructed to just immediately call an ambulance. Those are direct orders from our allergist, but we told daycare to call us instead of ambulance and we actually haven't...
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Re: How to Explain FPIES?

Jamie ·
Oh my gosh Jill, depending on the audience and circumstances, I purposefully make it sound more dramatic. Early on after G's diagnosis, we decided that we needed to drop our gym membership because we were no longer able to leave G in kidcare. The problem? Ellie's favorite activity and one of the most popular play stations for all the kids is a rice table. Obviously, we couldn't send G there (prior to G being born, Ellie used to come home from there with pockets full of rice!) and needed to...
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Re: How to Explain FPIES?

Jill ·
Yeah, no one watches Brynn either. My parents, Danny's parents, and our daycare. I can not say enough good things about our daycare. She has saved diapers as well, sent me pics of them, is working with me on a rotation diet....AND the big thing is that I TRUST her to make Brynn's food. I don't even send meals with. If it is something that the food program she uses will buy, she gets them (like fruit and potatoes). I am working on getting her all the coconut products so she can use them to...
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Re: How to Explain FPIES?

Jamie ·
Jill, sounds like you truly have the best daycare provider EVER. She's done more than anyone in my family has ever done! Wow!
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Re: In-Clinic Food Challenge Experience?

EatmonFamily ·
We had an amazing experience at Duke Children's Hospital. We had 1 to 1 nurse care, a nutritionist, and an FPIES specialist. The hardest part of the challenge was accepting we had to have an IV put in for precautionary measures. Luckily, the numbing cream they used prevented him from feeling the IV so there were no tears (just looks of worry). We knew going in that sweet potatoes, squash, and oats were trigger foods for our son. We decided to test for poultry instead of veggies. We brought a...
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Re: In-Clinic Food Challenge Experience?

Darbelp9 ·
Hello, we just brought our 1yo daughter to the hospital last Monday for a cow's milk challenge. I was very afraid of this test, but she passed it, so it is a wonderful ending and surpassing this fear and anxiety was worth it! It was an outpatient way, we went in the morning, (no eating since midnight, that was hard!),worst part was the iv line (very hard to find), but with numbing cream it was a little bit better. They made blood tests before and 6h after drinking the milk, to see if there...
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Re: FPIES Book for Children?

VR ·
I don't know about any books about FPIES but my kids GI wrote a children's book about eoe and it talks about food trials and scopes and hospital stays. It's called 'Eating Isn't Always Easy' by Dr. Yuan. http://www.amazon.com/Eating-I...411478939&sr=1-1
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Re: Swimming Lessons?

Ewilliams0312 ·
I've never even thought of this before. My son is 2 with fpies and we've been swimming many times. And water has gotten into his mouth many times. Maybe the parent was just telling you just for your knowledge. Just in case someone brings snacks or food to swim class. I definitely wouldn't feed him anything though unless the parents brought something. I think the best thing to do is contact the parent and voice your concerns.
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Re: Swimming Lessons?

RD mama ·
I can't imagine that there would be any problems. I always mention my child's FPIES because of the snack time/treat issue. FPIES reactions would typically be less severe than a severe nut allergy, for instance, and it wouldn't happen with contact with teeny amounts of food particles in the water. Ask the parent what kinds of reactions the child has had, and which foods are most important to avoid, and I think you will be put at ease -- my child does also have regular severe nut allergy, but...
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Re: Swimming Lessons?

Theresa ·
Hi I hate to be the bearer of bad news but my 2 sons have FPIES & EEG they have had reactions on swallowing water in pools. They get pale, shakes & their blood pressure drops. I just give them lots of bottled water & that helps them n they will be out of it for a little bit. As long as you are aware of his symptoms & can react with the appropriate steps all will be good!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
I have 2 with completely different diets. one can eat only rice and the other only wheat. I have found most of it lies with the grains or roots. But my first diagnosed with rice, corn, oats, soy, apples, bananas, white potatoes, carrots, peaches. The other didn't have problems for years except with corn. Its scary, but once you find a safe food try expanding to others similar like butternut squash to other squashes. It can help with a bit of variety. Same goes for other reactions. If your...
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
My 14 month old also has Fpies to rice and oats.....I was wondering what type of a diet does your child have? Are they able to eat noodles since they are made with wheat flour? I'm too scared to do a trial with it!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
it took a long time for me to try any of it. I wanted to be sure to find a company that didn't cross contaminate. I use Davinci pasta http://www.davincipasta.com/ for testing wheat. She just eats it with land o lakes butter and salt. I trial it one tiny bite at a time over 6-8 weeks. That's what the gastro dr rec. and then I also found that not stopping an item is good too. I stopped peanut butter once and then she reacted to it. Not sure why but haven't been brave enough to try it again.
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
Thanks for the info! My daughter can eat pretty much anything that doesn't contain rice, rice flour, oats, and any other type of flour. I've just avoided all foods with flour because I'm afraid that she will react to all wheats. Thankfully she loves meat and vegetables!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
Sorry, the diet for one of mine is fresh fruits like strawberries, blueberries, cherries, pears, oranges; veggies like sweet potatoes, peas, green beans, butternut squash, zucchini, yellow squash, acorn squash, broccoli, lettuce, tomatoes; and some meats like oscar meyer bacon, certain brands of ham, chicken without added solutions, beef. We only use Promise land milk, salted sweet cream land o lakes butter, cheeses, minute made OJ with calcium and D, Poly vi sol vitamins. want any more...
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Swimming Lessons?

The FPIES Foundation ·
Question received to The FPIES Foundation: I am looking for input on FPIES. I teach swim lessons to infants and young children. I recently had a potential client contact me about teaching [their child] . Because I am not familiar with this syndrome, I am trying to do some research to identify potential issues that could arise from teaching swimming to this child. I have protocols in place for children that I teach who have food allergies and for those who have reflux but this seems much...
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FPIES Book for Children?

The FPIES Foundation ·
A Family asks: "My daughter has a food challenge coming up and we are trying to prepare her by discussing what to expect. We have found a couple children's books discussing hospital stays, however I was wondering if you know of any books dealing with...
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FPIES Food Survey

AmandaB ·
When we first found out Matthew had FPIES we were frustrated trying to figure out what his next food trial would be.  We failed rice, then peas, and felt like we were in the dark playing russian roulette with our next choice.  I created this...
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High and Low Pesticide Foods

AmandaB ·
Hey, this is from a CNN article from about a year ago, but since a LOT of us here make our own baby food, I thought it would be a good re-post. Non-organic high Pesticide Foods - Some have up to 67 different pesticides in them.  These are...
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How to Explain FPIES?

AmandaB ·
I don't like to run around proclaiming to the world that Matthew has FPIES, but there have been a few times recently when I needed to explain it, and I TOTALLY botched it.   What's too much detail?  What's too little?  And maybe...
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If a Sibling has FPIES, will it be to the same foods?

The FPIES Foundation ·
A family asks:   "My 2 year old has fpies to rice and oats. It is not an official diagnosis since her pedi hadn't even heard of it until I brought some info to her but she has text book fpies reactions to rice and oats. We never sought an...
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In-Clinic Food Challenge Experience?

The FPIES Foundation ·
A family asks: "Can you please ask others to share their experiences of what to expect for a clinic based food challenge?"
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BabyCenter's 10 Best Foods for Babies

AmandaB ·
If you're like me, you are trying to find a balance between avoiding your kid's triggers and getting the best "bang for the buck" foods (in terms of nutrition) you can find into them.   Here's a list BabyCenter put together of...
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FPIES?

DSmyWorld ·
I'm new around here and was wondering if anyone thought my son's symptoms sounded like FPIES. DS has been EBF since birth and was diagnosed with GERD and food allergies/intolerances at 2 months. I was put on a strict elimination diet and DS was given...
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New Food Passes or Fails for the Survey?

AmandaB ·
I was updating the Food Survey with Matthew's latest fail (venison)...anyone have passes or fails they'd like to add? Just give me your state, child's initials, and the foods that they passed/failed lately, and I'll update their info!  Private...
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Refusing to Eat :(

AmandaB ·
I had a champion eater until he threw up the other day...now we can't even trick him into opening his mouth for food (the tricks work a couple times, then he catches on and can't be tricked anymore). We've tried tempting him with his paci,...
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6-month-old recently diagnosed

Jennifer Giambi ·
Hi all! My 6-month-old son Gus was recently diagnosed as FPIES to rice, as well as having a positive IgE reaction to eggs. We are in the process of trialing foods. I was wondering if anyone could help us come up with a food plan of action. His safe foods are below: carrots sweet potatoes apples bananas pears avocado peas Squash - in the process of testing. He loves to eat and we would like to make sure he continues to grow and get all the nutrients he needs. Any help would be great! Edit: He...
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