Tagged With "Neocate"

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Re: New Label Neocate Jr.

The FPIES Foundation ·
The FPIES Foundation continue to follow these events with empathy for fellow FPIES families and beyond this community. Please continue to bring any concerns regarding new label Neocate Jr forward, here or to Nutricia directly. Also,we wanted to let everyone know we received additional communication from Nutricia to pass along. " Thank you for the time you took to speak to both Steven and me. Thanks for providing us with valuable insights into FPIES and the FPIES community as we explore...
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Re: New Label Neocate Jr.

sadmama ·
I am so relieved and shocked to have stumbled upon this site and conversation about Neocate Junior. My nine year old son has EE and is allergic to all food. He has a gtube and survives on neocate junior. This formula saved his life, made him gain weight, gain color in his otherwise pale face, and greatly improved his life. Until the end of September 2012. At the end of September he suddenly got very, very ill. Headache, extreme fever, coughing to the point he couldn't breathe. He didn't...
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Re: New Label Neocate Jr.

momma gonz ·
Hello Sad mama. I am looking to speak with you. Can you message me information? savelittlemichael@centurylink.net also these are our kids https://www.facebook.com/savelittlemichael https://www.facebook.com/lidijashope https://www.facebook.com/Pennyspennies https://www.facebook.com/superkelson https://www.facebook.com/LivyLove and Team TNT :
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Re: New Label Neocate Jr.

Mommy's Happy Baby ·
@Penny's Pennies, would you be able to share with me your Neocate Support Group. I am new to all of this. No one has been able to pin point what is causing my 8 month old daughter to have bleeding stomach ulcers and enlarged lymph nodes along her colon. We have tried every regular formula imaginable, goat's milk, Elecare and we are currently on Neocate Jr. with Prebiotics diluted to 20cal/oz (we started today). My daughter is a wonderful baby, she hardly fusses during the day, but she has...
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Re: New Label Neocate Jr.

Mommy's Happy Baby ·
Can you share your Neocate Support Group. I would love to be a part of it! Originally Posted by Penny's Pennies: My name is Angela Teague and I have a currently undiagnosed child who is 2 years old named Penelope Rose. We have been on Neocate since April of this year and have problem solved through a few different forms of it. Our Occupational therapist has an Fpies kiddo and through her support we have followed the typical protocol to get our reactions under control! Infant formula was a...
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Re: New Label Neocate Jr.

The FPIES Foundation ·
Nutricia announced changes and upgrades to their product line and wants communities, such as those served by The FPIES Foundation, to be aware of changes to their Neocate range over the next coming months. "Neocate Infant, Neocate Junior and Neocate's EO28 Splash will be improved and made available with an updated nutrition profile based on latest scientific recommendations. The first product to be updates will be Neocate Junior. The change is in the micronutrients whereas we are following...
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Re: Neocate Nutra?

CoopersMumma ·
I'm only new here but thought I would share my experience with Nutra... my son cannot tolerate corn flour or corn (other than in Neocate formula and Nutra)... Nutra is a complete food particularly for babies / kids who cant really eat and definitely is a godsend for those kids.. We tried it but Cooper didnt really like it and he is still drinking his Neocate so I stopped the Nutra.... our dietician and our team of paeds prefer babies dont have Nutra unless really necessary - but I'm in Australia
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Re: Neocate Nutra?

music_rxmama ·
If he has enough foods to practice with, I might just wait on it. But again, that is me. We were on 6 foods just before B was 18 months and spent forever on 3-4. I think if there isn't anything to practice with or if it is the only way to fill a specific vitamin gap, I would push it more. But of course, you have to make the final call and you are a smart mama.
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Re: Neocate Nutra?

Mommy's Happy Baby ·
This is going to sound crazy, but my daughter could not tolerate Neocate Nutra and ended up at the cardiologist because the Neocate Nutra was causing her to have tatychardic episodes!! Anyone else experience something similar?
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Re: Neocate Nutra?

My Little Man ·
No, I think your perspective is right on. It can be great for oral skills, for allowing food on no-food diet, and for adding some nutrition as it is basically Neocate with corn starch added. That being said, there are kids that don't tolerate it- either for the corn trigger or for just that corn is too difficult to digest on a sensitive intestines.
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Re: New Label Neocate Jr.

Penny's Pennies ·
My name is Angela Teague and I have a currently undiagnosed child who is 2 years old named Penelope Rose. We have been on Neocate since April of this year and have problem solved through a few different forms of it. Our Occupational therapist has an Fpies kiddo and through her support we have followed the typical protocol to get our reactions under control! Infant formula was a fail because the Soy was too much, Tropical caused severe acid reflux with some nasty vomiting of mucous and bile,...
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Re: New Label Neocate Jr.

Save Little Michael ·
My son Michael has lived and thrived on Neocate products his whole life. He is only able to tolerate the Neocate Junior Unflaovred without prebiotics or flavor. He reacts to everything you let him ingest, medication, vegetables, fruits, meats, poultry, dairy, grains, candy, etc. The first can we tan into I thought (Michael was on gut rest, so no new food trials for two months prior) that Michael had a cold, or had possibly gotten into something. Then I called my husband as he was the one to...
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Re: New Label Neocate Jr.

Penny's Pennies ·
We noted that it turns Yellow when it sits out in her sippie cups Jennifer. I never even thought of that! Edited to add...her clothing also holds the stains when the formula spills on them. We have tons of white t-shirts and onesies that she wears when lounging around the house and they all have this foul greasy looking yellow stuff on them. I'm glad the group posted this page. I never would have thought to note the color.
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Re: New Label Neocate Jr.

My Little Man ·
I am so sorry to hear of these reactions....so hard, I know. What is the thought on what is causing it? Is there a commonality? The potential for rice contamination (due to the Nutra)? I pray there is a solution somewhere....I know personally how difficult it is to not have a safe formula; although my son is doing well now, we've struggled because of the very sensitive nature of his FPIES triggers.
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Re: New Label Neocate Jr.

Penny's Pennies ·
At this point as you probably know (My Little Man) we are worried about every detail possible and all I have personally asked for is a report so I can take it to my local university and ask their chemical engineers and some friends of mine in the science department to just talk me through it and help me brainstorm before going to an outside laboratory. They refuse....flat out talk AROUND the question. I can't understand if there is no issue with the formula why we aren't being given...
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Re: New Label Neocate Jr.

My Little Man ·
Yes, I had suspected the biggest suspicious culprit is the rice but also did hear of someone talk about a potential soy contamination. And, as you state- it's all just guessing and here-say until things are looked at more closely. I know just how you feel about wanting to analyze it, I wanted to do the same with my breastmilk that we knew my Little Man was reacting to - we went cold turkey at 7.5mo. to elementals - which he also couldn't tolerate but at that point, the differential was...
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Re: New Label Neocate Jr.

Frances Robinson ·
Hi from the UK! This topic is of great interest to me - our now 33 month old little man who suffers from mutiple non-IgE food allergies & suspected FPIES is still breast fed due to not even being able to tolerate the "hypoallergenic" formula that is known as Neocate LCP over here! We were told endlessly by his very poor Paeds that there was no way a child could react to Neocate. so our faith was well & truly lost in Necoate then. Due to the rubbish Paeds we kept our baby on LCP (up...
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Re: New Label Neocate Jr.

The FPIES Foundation ·
The families that have children currently affected in this Neocate Jr. label change may be low in number or high in number right now, but no voice is too small to be heard. Sharing your child’s experiences (tolerating or not) and providing further insights and experiences may help. Many of us, who are well aware that the answers simply may not be there in this rare diagnosis, take comfort that our experiences can be used for future knowledge and awareness of this allergy that affects...
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Re: Finally, a diagnosis, Neocate, and a comfortable and happy 6 month old

anjalshah ·
did you try nutramigen powder form, that worked for us. Also i believe fpies is now with a official medical code so it can be easier to work with insurane companty. Also try speaking to pedetrician they can often get you samples from company rep and oftet company have discounted programs. best of luck,
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Re: Finally, a diagnosis, Neocate, and a comfortable and happy 6 month old

tloveall ·
Your doctor with a dietician can prescribe the neonate with the correct nutritional amount for your son, which can be submitted to the insurance company for coverage. They need the diagnosis code and the calorie requirement to process correctly. Neonate can assist with this, they have a department that actual sits on the phone with you and the insurance company. Not sure what state you are in but Texas has actual legislature that requires full reimbursement of the formula when it is...
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Re: Finally, a diagnosis, Neocate, and a comfortable and happy 6 month old

Steve ·
Thanks TLOVEALL. How did you move off Neocate?
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Re: Finally, a diagnosis, Neocate, and a comfortable and happy 6 month old

tloveall ·
At a year old we began solid food. One food at a time, one serving per day for 5-7 days, if he didn't react and skin stayed healthy we put it on the pass list. It took awhile to build an actual diet that could sustain him but eventually we did and weaned off of the neonate by 18months. He is FPIES to rice, oats, banana, squash, and green beans. Fortunately he is fine with wheat. For a long while he ate beef, pears and strawberries due to skin reactions to a lot of other foods. We went...
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Finally, a diagnosis, Neocate, and a comfortable and happy 6 month old

Steve ·
Wow. That was a rough 6 months. Lots of doctors appointments, mommy having to hold Beau non-stop, non-stop crying, co-sleeping (still gotta fix that), ... Beau is our 3rd and my only son. Wife and I at each other, no time for each other and no time for the other 2. People would ask me how it felt to have a son, and it was honestly hard to answer. This little suffering guy turned our household upside down. Doctors and family told us he was stubborn, that's what babies do ... Based on his...
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Neocate Nutra?

AmandaB ·
So, our allergist wants us to trial Neocate Nutra.  I understand that the proteins are already broken down, and that it's iron fortified.  Are the texture and the iron the only things in the pro category?  I see that it has lots of...
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New Label Neocate Jr.

The FPIES Foundation ·
 The FPIES Foundation was founded with families in mind-- our mission is to support, educate, and empower. Parents have expressed concerns regarding symptoms and/or reactions from the recent Neocate Jr. label change. In response to our...
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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