Tagged With "Rice"

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Re: FPIES?

Zookeeper ·
Hi! And welcome to the group! I am glad you have found us, but sorry you have to be here. It is so hard to watch our little ones struggle. What you are describing sounds very much like a classic FPIES reaction to rice. The other issues you are having with your little guy being reactive to things in your milk can also be pretty common to FPIES. It sounds like you have some great support from a good allergist. I would suggest taking some articles to the allergist and/or GI and see what they...
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Re: FPIES?

DSmyWorld ·
Thank you! We actually have not been to an allergist yet because I thought my son's GERD and allergies were under control after seeing the GI, but I guess I was wrong and am now convinced that FPIES is also an issue. I actually don't think we ever reached a baseline and that could by why he is still spiting up/vomiting a few hours after every feeding (I was told that might not go completely away, so I guess I over looked it). The rice was by far the worse reaction, with puddles and puddles...
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
I have 2 with completely different diets. one can eat only rice and the other only wheat. I have found most of it lies with the grains or roots. But my first diagnosed with rice, corn, oats, soy, apples, bananas, white potatoes, carrots, peaches. The other didn't have problems for years except with corn. Its scary, but once you find a safe food try expanding to others similar like butternut squash to other squashes. It can help with a bit of variety. Same goes for other reactions. If your...
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
My 14 month old also has Fpies to rice and oats.....I was wondering what type of a diet does your child have? Are they able to eat noodles since they are made with wheat flour? I'm too scared to do a trial with it!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
it took a long time for me to try any of it. I wanted to be sure to find a company that didn't cross contaminate. I use Davinci pasta http://www.davincipasta.com/ for testing wheat. She just eats it with land o lakes butter and salt. I trial it one tiny bite at a time over 6-8 weeks. That's what the gastro dr rec. and then I also found that not stopping an item is good too. I stopped peanut butter once and then she reacted to it. Not sure why but haven't been brave enough to try it again.
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Re: If a Sibling has FPIES, will it be to the same foods?

Ashtyn'smom ·
Thanks for the info! My daughter can eat pretty much anything that doesn't contain rice, rice flour, oats, and any other type of flour. I've just avoided all foods with flour because I'm afraid that she will react to all wheats. Thankfully she loves meat and vegetables!
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Re: If a Sibling has FPIES, will it be to the same foods?

C-R ·
Sorry, the diet for one of mine is fresh fruits like strawberries, blueberries, cherries, pears, oranges; veggies like sweet potatoes, peas, green beans, butternut squash, zucchini, yellow squash, acorn squash, broccoli, lettuce, tomatoes; and some meats like oscar meyer bacon, certain brands of ham, chicken without added solutions, beef. We only use Promise land milk, salted sweet cream land o lakes butter, cheeses, minute made OJ with calcium and D, Poly vi sol vitamins. want any more...
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If a Sibling has FPIES, will it be to the same foods?

The FPIES Foundation ·
A family asks:   "My 2 year old has fpies to rice and oats. It is not an official diagnosis since her pedi hadn't even heard of it until I brought some info to her but she has text book fpies reactions to rice and oats. We never sought an...
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FPIES?

DSmyWorld ·
I'm new around here and was wondering if anyone thought my son's symptoms sounded like FPIES. DS has been EBF since birth and was diagnosed with GERD and food allergies/intolerances at 2 months. I was put on a strict elimination diet and DS was given...
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Second Child with FPIES - Help!

Lauriep ·
Hi there, My almost 4 year old had classic FPIES to rice and oats. Luckily he just passed Oats in hospital this past month and we will be trialing rice shortly. I also have a 9 month old who recently reacted to Barley - she was fine on it for 6 weeks, i happened to remove it for 3 weeks and then when I reintroduced it she had a classic vomiting reaction 2 hours later. So far she has been fine on a ton of fruits and vegetables as well as peas, chicken, soft cheese and yogurt. I can't get into...
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14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Angela L ·
My daughter was finally diagnosed with FPIES when she was 10 months old. Oats were the first trigger then followed by Rice, Barley and Wheat. Mostly all grains. Wanted to ask a question and share an ER letter that has been very helpful for us. Forgive me if there is another ER letter listed on the site somewhere but haven't had a lot of time to investigate the site. 1st the question: Has anyone used tapioca flour or coconut flour with these triggers? My concern is with the tapioca with her...
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

FPIESinMI ·
Hi Angela, We don't have more than one grain trigger but avoided all other grains for a long time (about one and a half for the oldest and just introduced wheat at 10 months to the youngest basically so I could get a sense of some more safe foods so I could wean from pumping at work around his first birthday) with both our kids who have FPIES to oats. Eventually wheat was safe for us but before it was we only used corn. Kix cereal, corn muffins, etc. not sure the other things in those and/or...
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Lauriep ·
I give my son tapioca and his worst trigger is rice, he outgrew oats already but still dealing with rice and he is fine on it.
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Menexedia ·
My daughter (now almost 16 months old) has FPIES to rice and oats. She hasn't been exposed to barley or wheat yet. I've used a number of "alternative" flours and she is ok with all of them: potato starch, tapioca starch, plantain flour, corn flour, chickpea flour, buckwheat flour, coconut flour, quinoa flour, almond flour. I found coconut flour impossible to use for baking, particularly if you are avoiding eggs. It absorbs tons of liquid. There are light, medium and heavy "alternative"...
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Angela L ·
It is so good to hear there is light at the end of the tunnel and she will out grow some of the allergies. No nut or dairy allergy. Thanks so much for all the great suggestions. I will be trying in the near future. Really appreciate everyone who responded. The ER letter has helped so much. Living in Birmingham AL FPIES is not very common. One more question: Has anyone seen a pediatric gastroenterologist? And has anyone heard of a child being allergic to something on top of FPIES. The...
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Fidel's mom ·
Dear Angela, if the test shows an Ige reaction , then it's considered atypical fpies .
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Re: 14 month old FPIES with Oats, Rice, Barley and Wheat triggers

Lex's mom ·
Hi Angela, I am from MD, my LO has the same triggers as your kid. She had severe reactions to rice, oats, wheat. Severe, severe vomiting with all grains. I am a nurse and had not heard of FPIES, we were struggling with it until she was finally diagnosed at 15months by an allergist. Thinking back about it, I think she had started with the symptoms since 3months of age when she was still being BF and supplemented with formula. My pediatrician kept telling me it should be food allergies so we...
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How to do an elimination diet

Ali N ·
Hi! my 8-month-old was just diagnosed with FPIES. She has been reacting to milk in my breastmilk since she was 2 weeks old. Frequent night wakings, vomiting and diarrhea have been an endless battle, to greater or lesser degrees, for her whole life. When she was 6 weeks old, I eliminated dairy from my diet. Her sleep improved (she began sleeping in 3 hour stretches) and her vomiting was greatly reduced. But I could still tell that she was reacting to one or more other foods. I started an...
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6-month-old recently diagnosed

Jennifer Giambi ·
Hi all! My 6-month-old son Gus was recently diagnosed as FPIES to rice, as well as having a positive IgE reaction to eggs. We are in the process of trialing foods. I was wondering if anyone could help us come up with a food plan of action. His safe foods are below: carrots sweet potatoes apples bananas pears avocado peas Squash - in the process of testing. He loves to eat and we would like to make sure he continues to grow and get all the nutrients he needs. Any help would be great! Edit: He...
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