Tagged With "CONNECT"

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Re: Where are you from?

Sarahmm ·
Florida
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Re: Where are you from?

EFoster ·
Central Nebraska.
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Re: Where are you from?

LukeysMum ·
Hey guys, just got our diagnosis today, and getting my head around it all - so good to have this website and hear from other Kiwis (I'm in Auckland too). My wee man is almost 8 months and so far dairy and rice seem to be the problems...would love to hear more from you all. Originally Posted by Skye: Originally Posted by Aucklandmum: Hi Aucklandmum, I'm from Auckland too! Haven't found any other mums from Auckland in the other online groups. My 7mo has just been diagnosed with FPIES so very...
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Re: Where are you from?

LukeysMum ·
Hey another Auckland Mum :-) we just saw Jan Sinclair today in St Heliers and she was lovely, seemed to know her stuff really well. Good luck! Originally Posted by Aucklandmum: Hi Skye So glad to find someone from Auckland. Which doctors did you see and how did they come the conclusion? We are still in the process and still with General Ped at Starship and only been told they suspect protein intolerance. Cheers
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Re: Where are you from?

brandy ·
Neosho ,MO
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Re: Where are you from?

Vivi's Mom ·
I'm in the Phoenix, Arizona area. We just found out last week that our 6 month old has FPIES.
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Re: Where are you from?

WBDM ·
Northern Michigan
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Re: Where are you from?

Swatson ·
United states, Greeley, Colorado, My son is one year and 3 weeks.
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Re: Where are you from?

Avery'smom ·
United State - Boise, Idaho. My son in 3 1/2
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Re: Where are you from?

Kristen ·
USA. Franklin, MA. Our son with FPIES turned 3 last week.
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Re: Where are you from?

lbivin ·
We are from The Woodlands, TX. Our daughter is almost 9 and FPIES to milk.
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Re: Where are you from?

Cathy ·
I'm In the US, The Philadelphia area. My son is almost 18 months and has FPIES to milk, soy, egg, rice, oat, and coconut.
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Re: Where are you from?

Katrina ·
Hi Katrina here Plainfield, IL (west burbs of Chicago) my daughter is 9
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Re: Where are you from?

nicurn75 ·
From springboro, Ohio. My son Brady is almost 5 and now has four safe foods
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Re: Where are you from?

Bug's Mama ·
We are just outside Phoenix, Arizona and have felt alone in this process. My Son is 14 months old and found out about 4 months ago after a long terrifying trip through many hospitals and doctors.
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Re: Where are you from?

Skye ·
Originally Posted by Aucklandmum: Hi Aucklandmum, I'm from Auckland too! Haven't found any other mums from Auckland in the other online groups. My 7mo has just been diagnosed with FPIES so very new to this and feel very alone! So happy to have found another Auckland mum! Hi All i am from Auckland, New Zealand. My LO is 20 months old. We have been on a. Long journey and still undiagnosed but her Paed suspects FPIES. Anyone else from NZ here? Thanks
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Re: Where are you from?

Katrina ·
WOO HOO another 9 yo Sometimes I feel alone due to our age! Originally Posted by lbivin: We are from The Woodlands, TX. Our daughter is almost 9 and FPIES to milk.
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Re: Where are you from?

Aucklandmum ·
Hi Skye So glad to find someone from Auckland. Which doctors did you see and how did they come the conclusion? We are still in the process and still with General Ped at Starship and only been told they suspect protein intolerance. Cheers
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Re: Where are you from?

Christine ·
I live in Tinton Falls, located in Monmouth County New Jersey. My son Michael is almost six years old.
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Re: Where are you from?

Mom2W ·
Hi! We are in the St. Louis, Mo area. My 10 month old son has FPIES to milk, oats, and sweet potatoes.
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Re: Where are you from?

Jenboz ·
Shreveport, Louisiana 12 month old with no safe foods yet. Neocate formula only. On top of fpies, she seems to be developing allergies (itchy red rashes around mouth and on stomach) to foods we are trialing her on for fpies. Foods like bananas and carrots which she has had before and been prick tested negative for allergies to. Mind boggling!
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Re: Where are you from?

fpiesmom ·
We are from nebraska. My 18 month old daughter has FPIES to milk.
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Re: Where are you from?

Amy ·
long way from New Zealand... we are in Minneapolis. Getting ready to start a support group here for parents if anyone in the area is interested!
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Re: Where are you from?

Tab04 ·
United States, Greenville, SC. Would love to start a support group in the area. Tabwilson@inbox.com is my email if you are in the area.
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Re: Where are you from?

Kiwimama ·
Hi I'm in nz too but in Sth Island. I've posted couple of messages on here before trying to find nz fpies mums..my baby is 13mths. Fpies to egg, possibly banana, yoghurt & avocado too. Still new/early days for us x
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Re: Where are you from?

Aucklandmum ·
Hi All i am from Auckland, New Zealand. My LO is 20 months old. We have been on a. Long journey and still undiagnosed but her Paed suspects FPIES. Anyone else from NZ here? Thanks
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Re: Where are you from?

Amber ·
Boise, ID. I'm glad to see we're not the only ones here! Any recommendations for doctors?
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Re: Where are you from?

ASaunders ·
Georgia! I created a Facebook group called FPIES Southeast. Please join!
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Re: Where are you from?

Bugaboo ·
Dayton, OH
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Re: Where are you from?

MichelleM. ·
Westwood New Jersey in Bergen County. I'm looking for other moms out there to chat with about FPIES.
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Re: Where are you from?

Elisa81 ·
Albany, NY!
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Re: Where are you from?

Mrs.spb1 ·
Hi there, my 8 month old was diagnosed with f pies to all grains and we currently have to stay away from carrots, bananas and peaches and he also has a milk and soy protein intolerance. I was hoping to connect with other families in our area for support and guidance. We are located in franklin virginia.
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Where are you from?

The FPIES Foundation ·
Make local connections by listing your Country/State/Region here! 
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FPIES Registry!

The FPIES Foundation ·
The FPIES Foundation is excited to launch ‘The FPIES Foundation Global Registry, the first ever of its kind! The registry is a ground-breaking opportunity to directly bring families affected by FPIES together with doctors and researchers. Through this registry, we are partnering with Patient Crossroads CONNECT program, a part of the National Institutes of Health (NIH) Global Rare Disease Registry Program to provide this important tool. We are so proud to invite all of you to come and...
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Re: Where are you from?

Lex's mom ·
Hi I am from Elkridge, Maryland. My LO was diagnosed with FPIES at 14months, looking to connect with other moms in the area. Like most other parents with FPIES kids it has been a long stressful journey for us. Just wanted to know if any one has had from dietician locally, If yes please recommend.
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Re: Where are you from?

Franny ·
We are in Southern Maryland.
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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