Tagged With "experiences"

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Re: In-Clinic Food Challenge Experience?

EatmonFamily ·
We had an amazing experience at Duke Children's Hospital. We had 1 to 1 nurse care, a nutritionist, and an FPIES specialist. The hardest part of the challenge was accepting we had to have an IV put in for precautionary measures. Luckily, the numbing cream they used prevented him from feeling the IV so there were no tears (just looks of worry). We knew going in that sweet potatoes, squash, and oats were trigger foods for our son. We decided to test for poultry instead of veggies. We brought a...
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Re: In-Clinic Food Challenge Experience?

Darbelp9 ·
Hello, we just brought our 1yo daughter to the hospital last Monday for a cow's milk challenge. I was very afraid of this test, but she passed it, so it is a wonderful ending and surpassing this fear and anxiety was worth it! It was an outpatient way, we went in the morning, (no eating since midnight, that was hard!),worst part was the iv line (very hard to find), but with numbing cream it was a little bit better. They made blood tests before and 6h after drinking the milk, to see if there...
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In-Clinic Food Challenge Experience?

The FPIES Foundation ·
A family asks: "Can you please ask others to share their experiences of what to expect for a clinic based food challenge?"
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Sunbutter FPIES Experience

JJ Ohio ·
My DD has confirmed allergies (skin & blood) to cashews, pistachios and eggs. She exhibited symptoms of hives and eczema any time she's ingested these ingredients. I noticed that whenever we fed her sunbutter, a few hours later she would vomit profusely and become extremely lethargic. This occurred 3x that we gave her sunbutter. I asked our allergist last time we were in to do a skin prick to sunbutter which came back negative, which further leads me to think it's an FPIES reaction vs.
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Re: Sunbutter FPIES Experience

MarkLaBoss ·
We just trailed sunflower oil to cook with as coconut oil has been smoking our house in the oven. Our son Marcus did fine with it. We are in the middme of a cauliflower trial and after that plan to move to sun butter. If you no one responds or you want to wait a few weeks we can get back to you? Either way good luck! Mark
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Re: Sunbutter FPIES Experience

JJ Ohio ·
That would be great thanks. I need to just do a small trial but I hate to see her having a reaction.
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Re: Sunbutter FPIES Experience

Franny ·
I reassure you that you are right . I have realized that the additives are the contaminates for many of products our little one reacts to (polysorbate being a known and mixed tocopherols being very questionable). I don't know how old your is but after 5 years, I have also noticed her being effected by shock symptoms (two definite and very scary situations). Apparently normal for those with food allergy/intolerance. Call/text if you want 240-416-1663. cooking notes: - Olive oil if you can...
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Re: Sunbutter FPIES Experience

MarkLaBoss ·
Sunbutter (from sunbutter.com) has this for ingredients: roasted sunflower seed, sugar and salt which is why we were so eager to try it. And it doesn't taste bad.
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Re: Sunbutter FPIES Experience

Franny ·
You guys are lucky, I haven't been able to find this basic product in my stores. . . Hello Amazon!
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Re: Sunbutter FPIES Experience

MarkLaBoss ·
Oh! It wasn't in a store. We Amazon almost everything from 100% coconut milk w/ no additives to organic prune packs to elecare junior. Please check out my previous post on Amazon Smile and the FPIES Foundation.
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Re: Sunbutter FPIES Experience

Jess ·
I second the advice on cooking with olive oil- my son reacts to almost everything and that has been safe. My son refused to eat Sunbutter (didn't like it). So, we're trialing Tahini instead (made from sesame seeds.) We'll see if it works!
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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