Tagged With "children"

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Re: Hey Texas!

SarahRoth ·
I am in McKinney TX and I have FPIES.
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Re: Hey Texas!

solothecat9 ·
We are also in the Austin area, and my son (who turns 3 in a week) is FPIES to dairy. We also go to Specially for Children. I see I'm a few years late replying to this though :0)
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Re: Hey Texas!

RD mama ·
Also in the Austin area, and have an appt to see Dr. Varshney at Specially for Children-Allergy and Immunology next month. We got the (still tentative) diagnosis from Dr. Asish Barad, a pediatric GI at Scott and White with more experience in FPIES than most. I am a registered dietitian, by the way, so I am getting more personal experience managing severe food allergies than I ever wanted! So far, the only safe food is orange juice, but he's doing okay on Elecare Jr, just a little small.
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Re: Hey Texas!

AmandaB ·
Hey Austinites! My son will be three in December, and we're still dealing with FPIES. If you'd like to get together for a playdate sometime, that would be awesome We're up in Cedar Park, what part of town are y'all in?
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Re: Hey Texas!

AmandaB ·
RD Mama, we LOVE Dr. Varshney She's awesome, and though she'll give her own recommendations as far as foods to trial, if you're not comfortable with them she'll let you take the lead or go your own way. We see a RD in Austin, Anne Wilfong, and she was SO helpful. Researching FPIES for Matthew really gave her a whole new area to look into, but she was awesome and did a great job at keeping him w/in the food families of his safe foods while getting his nutritional profile more complete. Did...
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Re: Hey Texas!

solothecat9 ·
I am in Round Rock. My son just turned 3 and is still FPIES--only to dairy, but he trialed it in the office back in July and it was a definite fail :0(. Which means we have to trial again next summer, which I am not looking forward to. We see Dr. Kayser at SFC. I would definitely do a meet-up somewhere, school starts again tomorrow so it is about to get busy, but we can find a morning sometime to meet at a park or something. Just let me know.
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Re: Hey Texas!

Nana ·
Houston area Nana here, my youngest grandson was diagnosed with FPIES at 5 months of age, he will be 1 next month and this has been a journey that has kept us on pins and needles. Last month was probably the worst for us because he got so sick that he was admitted into the hospital for sever dehydration. His reactions have been to rice, oats, grains and bananas. He has done very well with everything else and hoping that it continues. As of today he has 12 safe foods.
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Re: Hey Texas!

RD mama ·
Okay, we saw Dr. Varshney, and I did really like her! She thinks my son has FPIES only to rice, and that a better diagnosis for him overall is MFPI - multiple food protein intolerance. He does have more lower GI symptoms than upper, and he also has an apparent IgA deficiency, so after doing a little reading, I think she's right. Apparently it's a similar disorder, and he should still grow out of it, so in practical terms it doesn't make a lot of difference. We tried Periactin recently and it...
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Re: FPIES Book for Children?

VR ·
I don't know about any books about FPIES but my kids GI wrote a children's book about eoe and it talks about food trials and scopes and hospital stays. It's called 'Eating Isn't Always Easy' by Dr. Yuan. http://www.amazon.com/Eating-I...411478939&sr=1-1
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Re: Swimming Lessons?

Ewilliams0312 ·
I've never even thought of this before. My son is 2 with fpies and we've been swimming many times. And water has gotten into his mouth many times. Maybe the parent was just telling you just for your knowledge. Just in case someone brings snacks or food to swim class. I definitely wouldn't feed him anything though unless the parents brought something. I think the best thing to do is contact the parent and voice your concerns.
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Re: Swimming Lessons?

RD mama ·
I can't imagine that there would be any problems. I always mention my child's FPIES because of the snack time/treat issue. FPIES reactions would typically be less severe than a severe nut allergy, for instance, and it wouldn't happen with contact with teeny amounts of food particles in the water. Ask the parent what kinds of reactions the child has had, and which foods are most important to avoid, and I think you will be put at ease -- my child does also have regular severe nut allergy, but...
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Re: Swimming Lessons?

Theresa ·
Hi I hate to be the bearer of bad news but my 2 sons have FPIES & EEG they have had reactions on swallowing water in pools. They get pale, shakes & their blood pressure drops. I just give them lots of bottled water & that helps them n they will be out of it for a little bit. As long as you are aware of his symptoms & can react with the appropriate steps all will be good!
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Swimming Lessons?

The FPIES Foundation ·
Question received to The FPIES Foundation: I am looking for input on FPIES. I teach swim lessons to infants and young children. I recently had a potential client contact me about teaching [their child] . Because I am not familiar with this syndrome, I am trying to do some research to identify potential issues that could arise from teaching swimming to this child. I have protocols in place for children that I teach who have food allergies and for those who have reflux but this seems much...
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FPIES Book for Children?

The FPIES Foundation ·
A Family asks: "My daughter has a food challenge coming up and we are trying to prepare her by discussing what to expect. We have found a couple children's books discussing hospital stays, however I was wondering if you know of any books dealing with...
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Hey Texas!

AmandaB ·
So, I guess we belong here?  Kind of feels like we should get a section all to our own, since we were our own country and all ;) We're in the Austin area - Cedar Park actually.  The allergist we see is with 'Specially for Children...
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