Like so many others here, our otherwise perfectly healthy 4 month old had an acute response to a pea/oatmeal mixture after the third time offering it to her. Textbook FPIES (from what I can tell): 6-7 vomiting sessions, about 5-10 minutes apart and beginning 2 hours after I fed her. She went limp and white and I was terrified. By the time we made it to the ER and into a room she was dry heaving and dozing intermittently. She woke up within 30 minutes smiling and acting like her normal sweet self.
When we visited her pediatrician the following Monday, she was pretty relaxed about the whole thing. By that time I had the ER discharge papers saying "virus" in hand and print outs about FPIES because any non-moron could deduce a virus doesn't come on with that intensity and pass in an hour and half. She looked at the printouts and said, yes, I've seen about 4 children with this in 20 years of practice and they all outgrew it by 9 months. "Some doctors don't think it's a real thing." That comment concerned me because I held our daughter in my arms, afraid for her life... I can attest- it is a real thing. She never would officially say I think this is FPIES and her advice was to stick to breastmilk only until 6 months old, and then to wait 5 days between each new food. She said no grains of any kind- only fruits and veggies. She wouldn't recommend a schedule of what foods to try or in what amount.
We're living in a more rural part of Texas right now, but we're in the process of moving back to Dallas in the next 3-6 months. I see that there is an FPIES specialist there. She's currently 5 months old, which means our solid introductions, according to this pediatrician, should begin in less than a month.
My questions, to anyone who cares to weigh in, are: would you take your child to the specialist in Dallas BEFORE introducing solids? Or trust that the pediatrician here is competent? @Luke's mom I see that your story is similar and recent. Where are you in your journey? What kind of doctor is he seeing now?
I'm super nervous about giving her solids. The hospitals here are less than stellar. I just don't know what I'd do if, God forbid, this happened again or was worse...
Thanks in advance!!