Help with "safe" foods to eat while breastfeeding FPIES baby

Hi everyone,

So we are pretty sure our (4m old) son has FPIES, we are just waiting to meet with an allergist.

While we wait it was suggestsd we try TED since i want to keep breastfeeding and so far all formulas have been a fail... Our doc doesnt know much about FPIES so was a loss as to what to suggest we eat besides avoiding our main triggers so far (rice, oats, chicken, beef, turkey, sweet potatos, bananas, lentils, dairy, soy, eggs) are all triggers we know of so far....

My question is... 

What are some foods that might be "safe" for us to eat while tryinf to reach baseline? Ive looked everywhere and cant find ANYTHING for a list of reccomended food to start an FPIES TED with... Unfortunately its about a 3m wait to get in to see an allergist where i live so i really dont want to just wait it out and cause him more pain. (I know safe foods can vary depending on baby, im looking for a general idea) 



Thank you so much for your help! ❤

Original Post

Is your baby solely nursing? That will help if you are not trying things for both of you. I never did a strict TED as that can tank your milk supply. It varies from baby to baby what is a trigger. My youngest (I have two FPIES boys) reacts through my milk to dairy, soy, eggs, wheat, oats, rice, avocado, apples, pears, all stone fruit, sweet potatoes, black beans, and I feel like i’m missing something. And I have to remove all races including medical grade lactose in medication.  Keeping a food journal is essential!! It takes time but can be done. I kept my diet simple when on baseline hunt. It takes weeks for some things to get completely out of your system. 

Also an allergist and a GI specialist working together plus a dietitian is the recommended combo of medical professionals in the US. It might be worthwhile to get a referral to both while you wait.

On FB in the big FPIES group is a Spreadsheet of foods that have the greatest percentages of passes. That might be helpful to you. 


So my story is a bit different as we didn’t have an FPIES diagnosis until after solids started. But we had lots of soft signs for our first and I KNEW my second had it while nursing even though the allergist cleared him. I also did not follow a TED diet for the same reason of PP of needing to keep up my milk supply. Our allergist felt the reaction my two FPIES kids had through my milk wasn’t enough to warrant possible loss of milk. In hindsight he was right but they were still reacting (discomfort pooping, odd poop color and smell but never blood, diarrhea, or vomit). He decided this based on the fact that both were gaining weight and staying on their percentile curves. He also said while everyone says things stay in milk for two weeks that if you increase or eliminate a food you should see a reaction in a nursing baby within 24 hours. I didn’t share that to make you question your TED, just to give some extra info because our pediatrician also knew nothing about FPIES until we had it with our first.

Have you found the google survey on FPIES that moms with FPIES babies fill out? If so, we started there for safe foods. Though all FPIES babies are different. Our allergist also explained that gut development basically happens in three month chunks so they might be clear of an earlier reaction at 6,9, or 12 months.

Good luck, Mama and hang in there!


I tried a TED with our son while breastfeeding but we didn’t have a diagnosis yet either, so it was mostly just trial and error. I lost a lot of weight very quickly (not in a healthy way) and my milk supply really decreased. Because they can react to any food, it’s hard to do in a healthy way for you (my guy reacted to 19 different things at the time). We ended up with Alimentum for him; our younger son had FPIES reactions to fewer things and did great with goat milk with added goat colostrum. One day at a time! Sounds like you’re doing great; it’s a hard season. 

Thanks so much to everyone that has replied already! 

We are solely breastfeeding right now and i plan to keep it that way until little one is 8 months, then starting to try solids then.

We've had a new development to our symptoms. He had his first bloody diaper, yet i have no clue what set it off -im now just planning to avoid everything Ive eaten within the last 24hrs just to be safe untill i feel comfortable trialing things. 

We've tried giving him Alimentum RTF in the past, but he seems to react to any trace of soy (including oil).

I did request to join the fb group, just waiting for my request to be approved. 

I exclusively breastfed all of my children (5 total) and three of them had FPIES. What I can pass on is the best thing I did was start from scratch.. I basically picked 3 food items and only ate  those three items and for a few days if my baby reacted then I took out one item and waited a day with just the other two and went like that until I found enough foods that I could eat that he would do ok with through my breastmilk. My now 3 year old son was the worst. He was deathly allergic to all grains and anything that had traces of grain in it. We learned that the hard way ended up spending 4 days in the hospital with him and almost lost him due to doctors giving him a medicine that had a corn derivative in it.. He also reacted if I consumed any dairy or soy, sweet potatoes, pumpkin, squash and peas and all store bought meat. I basically started reading every single label and learning all the code names for different additives that contained grains or soy. For the meat I had access to venison and he didn’t react to that. It took a lot of dedication but slowly he started outgrowing reactors usually about every 3-6 months. And now he is a happy healthy almost 4 year old who is almost all better! He still reacts to rice but other than that he’s good!

Just drink lots and lots of water and that will help keep your supply up while you make the diet changes!! Hang in there!! And like someone else’s post mentioned, keep a good food journal so you can keep track of what’s good and what’s not! Good luck mama!! 

Our son couldn’t do the RTF Alimentum either, but was ok with the powder oddly enough. He still has horrible reactions to soy (he’s 6 now). has great resources for things like hidden dairy and other ingredients. We did a strictly soy-free vegan diet with him until he was three; he ate a lot of black beans and avacado. (Maybe you could try white beans?) my biggest advice would be to make sure you’re getting adequate nutrition, because if mama isn’t healthy, then you can’t be at your best for your baby while navigating all of this. Do what is best for you AND baby. 

Hello and sorry you and your family are having trouble. I knew within the first week that something was wrong after my daughter was born. I told my midwife that she cried and cried and her stomach seemed bloated. By the end of the first few weeks I had witnessed several mucus green poops and sometimes with blood. I happened to have three soy lattes from starbucks during that time and each night she would barely sleep and we cried and cried together. She also had a rash anywhere my milk would touch. So her face and hands then spread all over her head and upper chest. She spit up a lot (was used to that with my first child) but this was different. She would occasionally vomit and I thought it was because she over ate. She wanted to nurse all evening long...She was clearly in a lot of pain during the first few weeks. As  soon as I told the midwife I thought she was allergic to soy she suggested I cut it out completely. I then ate MacDonalds french fries a week after cutting it all out (which has some soy oil) and she vomited everything immediately after feeding. She didn't have much of a reaction after the vomiting then which was great. I had also cut out egg because I thought that was bothering her too then tried an egg a week later. Vomited everything again so I stopped eating eggs. I cannot eat dairy so that was already missing in my diet. In the end I basically ate fruits, veg, meats, breads etc with no dairy, no soy or eggs. She still had some trouble like eczema but she was such a different child. My daughter was such a happy girl!!! I happened to need breast surgery when she was just over 8 months old so the surgeon ordered allergy testing right away for her. It came back that she was anaphylactic to nuts and dairy in addition to the FPIES!!!! She then went on Neocate which was a life saver (this is now covered by the government here in Ontario, Canada). We trialed her eating wheat, rice and oats and she failed miserably with those but was good with most veg/fruit. She is now just over 2 years old and I have found and cooked some many great things for her but she will trial egg at the hospital in April. She drinks hemp milk and some pea milk which I use to cook with. I think it would be good for you to keep a food journal if you aren't already. You know your child best and will know when something has bothered him. Write everything down for a while and exclusively breast feed for the next couple months which it sounds like you are already doing. Quinoa is a good one for my daughter. Chickpeas/hummus and beans for protein if you can't eat most meats. Don't be afraid to tell your doctor if you want to try and get in sooner or call the allergy clinic yourself. You can ask, you never know. Good luck!!

Our son was reactive to foods from day 1.  He has multiple food intolerances to this day (age 10) and we continue to keep a daily food diary.  He also has FPIES.  I breastfed for 2 yrs. 9 months and kept a strict food journal.  I had to keep track of the bottles to know what I had ingested.  It was easier to eat some of the same foods for awhile until his symptoms cleared.  He too had bloody stool after I ate some cheese.  Otherwise his typical stool looked like bird poop mixed with cottage cheese.  He was reactive to dairy, soy and corn - even the smallest proteins.  He tested positive on patch as providers were telling me it wasn't likely that he was reacting to Elacare and etc.  For us, Costco bacon and yams were our "safe foods".  I ate this and pumped (it wasn't easy but there were enough calories there that I was able to keep making milk).  Once he got looking good, I would add 1 item at a time.  In general, it can take 1-24 hours to show up.  sometimes it was the 2nd day that it showed for us.  I bought a calendar book where you have the month in view, but then can flip to a daily page and that is where I journaled his symptoms and kept track of poor sleep, general affect / mood and etc.  Once I laid it out on was much easier to track and suspect foods.  We were told it can take 3 weeks for the inflammation to go down and therefore it is best to wait 3 weeks before trialing a new food.  You can see how quickly a year can go by with a reactive kiddo.  Honestly, I haven't always abided by that out of necessity.  However, the theory behind it is when the inflammation is high...there may not be as much success with the next food trial due to how the T-cells work.  Time goes by slowly through this process, but there is a reason for it.  It helped for me to mentally scale back to a "day-by-day" mode otherwise the mental frustrations can be tough.  The food journal will be helpful when you do see the Allergist so keep of list of what foods and what symptoms you saw.  I agree - a good Allergist will help assess "safe foods" by patch testing (we started at 6 months and has been very reliable), GI doc scoped to assess / rule out other potential problems, and Dietician helped to understand the various names of foods i.e. Dairy / Casein and etc.  Also, the Dietician was helpful in being creative with what he could eat.  

Hi there

My DD has Fpies, but thankfully never reacted to my breastmilk. My allergist suggested we try Alfamino (super expensive but they basically build a protein from amino acids so there is nothing to react to, you can buy it on Amazon). My DD now drinks either flaxseed milk or pea protein milk, but some kids react to peas, but for you it may be a good option. We also did a food journal amd only introduced one food per day that she would eat for 2 weeks. It usually takes more than one introduction to have a reaction. 

God luck to you!!


Add Reply

**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: