Hi! my 8-month-old was just diagnosed with FPIES. She has been reacting to milk in my breastmilk since she was 2 weeks old. Frequent night wakings, vomiting and diarrhea have been an endless battle, to greater or lesser degrees, for her whole life.
When she was 6 weeks old, I eliminated dairy from my diet. Her sleep improved (she began sleeping in 3 hour stretches) and her vomiting was greatly reduced. But I could still tell that she was reacting to one or more other foods.
I started an elimination diet a week ago (when she was nearly 8 months old) because I was at my wit's end trying to determine the cause of her sleeplessness and tummy pains. I eliminated the top baby allergens - what, soy, dairy, eggs, nuts, fish and peanuts. We had instant success!! By the 3rd night, she was sleeping in 9 hour stretches and her diarrhea was no longer mucous and funny smelling! First time ever!! But then, on the fourth day, she reacted to something - possibly avocados that my husband fed her.
My first question is... now that I have this FPIES diagnosis, should I eliminate even more from my diet? (Oats for example?)
My second question is.... how long does it typically take babies to respond to food triggers? 1 hr? 24 hours? longer? shorter? Have others had success with keeping a detailed food / reaction journal?
My third question is... right now, my baby girl is able to eat brown rice cereal, cheerios, and carrots. But the other day, she MAY have reacted to eating some plain white rice. Do you think it's possible for her to be ok with brown rice cereal and not OK with white rice??