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Anyone else out there with adult symptoms? When I had autoimmune disease triggered a few years ago, I also discovered that even a tiny nibble of certain foods gave me terrible stomach troubles (yerba mate, artichoke, butter lettuce, and more recently spinach).  My second son has multiple fpies triggers (and third new son possible rice trigger), and I started to wonder, because his symptoms were the same as mine, if I had adult fpies.  Never bothered to see the allergist about it though, because I just avoid the foods and that's it.  Would be nice to know I'm not the only one out there though.

I'm 74 and still am unable to tolerate any dairy - so am 100% dairy free since the 1970's.  It started the 2nd week after birth [1942] with projectile vomiting + diarrhea.  As an infant I was switched to raw goats milk, which I tolerated somewhat better, with rice gruel.  Then, in my late 30's when I was having violent episodes, in and around pregnancies and some concern I would loose a particular baby, that it was finally addressed again.  It was then that I saw  GI specialists, who all proved to be useless.  Then, finally a friend recommended a   old-time allergist who was interested in food allergies.  He did skin/blood testing + an extensive food diary [that finally was the key].  I found that dairy was not the only culprit, but certainly to main one!  It has been very difficult to diagnose me because my allergy symptoms are not always immediate. FPIES fits me to a tee -- except for the fact that everything I see says that babies and children out grow it.  If in truth, that is what I have..... 'taint always so!   If I get a hold of even minute amounts of dairy my body goes crazy and I go "toxic" just like when I was a baby.  It can last anywhere from 3-7 days or longer.

 

I forgot to mention that we have done DNA testing in recent years to search for possible LCT variances for Congenital Lactose Intolerance  [ no sign of it so far, though I do lack the "persistence" part of LCT ] -- upper endoscopy to check for Lactase Deficiency  [ yes this was very positive!].  But, we think that whey and/or casein are somehow involved too.

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