Right now we are trialing pears and I've noticed with this and past trials (before he fails) it seems he gets very sleepy after eating food. He will eat then sleep for a few hours no matter the time of day which is unusual for him.
My question is whether there is such thing as a mild FPIES sign like being tired? If we could pinpoint something like being tired early on before the horrible big reaction maybe we could stop the trial to prevent it?
Oh, and thanks for all the great work on this site. As you know doctors with any knowledge of FPIES are rare so its nearly impossible to get any useful help.