Sunbutter FPIES Experience

My DD has confirmed allergies (skin & blood) to cashews, pistachios and eggs.  She exhibited symptoms of hives and eczema any time she's ingested these ingredients.

I noticed that whenever we fed her sunbutter, a few hours later she would vomit profusely and become extremely lethargic. This occurred 3x that we gave her sunbutter.  I asked our allergist last time we were in to do a skin prick to sunbutter which came back negative, which further leads me to think it's an FPIES reaction vs. an IgE.

Has anyone else experienced this?  If so, did you also have a reaction to sunflower lecithin?  I don't believe she's ever ingested it before and I can definitely do a trial, but I'd love to hear others experiences with it.  We don't eat a ton of prepared foods, but I was hoping to give her hemp milk but have hesitated trialing it due to the sunflower lecithin.

I would love to hear anyone else's experience!

Original Post

We just trailed sunflower oil to cook with as coconut oil has been smoking our house in the oven.  Our son Marcus did fine with it.  We are in the middme of a cauliflower trial and after that plan to move to sun butter.  If you no one responds or you want to wait a few weeks we can get back to you?

Either way good luck!


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