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Welcome-Getting Started

10 Topics

Welcome to The FPIES Foundation Forum!

Last Post: A Parent in Need of Help 7/10/163:02 PM

109 Topics

Introductions-Share Your Story

Last Post: Late Diagnosis 10/24/222:00 PM

84 Topics

Last Post: My son was diagnosed 10 days old. 10/11/2111:53 PM

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Conversation Starters

60 Topics

Question from a Family

Here you will find other FPIES families who offer a community of support, as well as a wealth of FPIES knowledge. Each child's situation is unique, so treatment plans must be individualized. Get started by reviewing and compiling information, then plan to meet with your doctor and/or medical team. We are a group of parents, just like you, so cannot give a diagnosis, nor dispense medical advice, but hope to be a valuable resource none the less!

Last Post: Recent increase of FPIES???? 3/16/231:16 PM

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Feeding Support

15 Topics

Breastfeeding Support

Last Post: overcoming fpies by breastfeeding 6/11/182:41 PM

11 Topics

Formula Support

Last Post: Free Neocate Infant for Family in Need 5/27/1910:15 PM

68 Topics

Last Post: When to start trials? 2/3/2111:03 AM

20 Topics

Recipes and Cooking Tips

Last Post: Son’s first birthday 6/7/217:23 PM

12 Topics

Label Reading and Cross-Contamination

Last Post: Question from a parent: Quinoa Queen 10/24/1710:36 PM

30 Topics

Last Post: Epipens? 1/30/2312:28 PM

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Making Connections

6 Topics

Northwest Region

Last Post: SLC, Utah 12/29/148:45 PM

1 Topic

Southwest Region

Last Post: Phoenix az 6/16/153:53 PM

4 Topics

Last Post: Finding other FPIES families to connect with 1/24/1712:24 AM

9 Topics

Last Post: Missouri 11/28/1610:51 AM

12 Topics

Northeast Region

Last Post: Suffolk County, Long Island, NY 7/25/1912:14 PM

7 Topics

Southeast Region

Last Post: North Carolina anyone? 10/30/159:59 AM

0 Topics

0 Topics

2 Topics

Last Post: looking for other older children for my daughter to connect with 9/9/1610:41 PM

0 Topics

1 Topic

FPIES in Adults

Adults with FPIES symptoms and/or diagnosis can exchange information here!

Last Post: Medical Literature 12/17/167:24 AM

3 Topics

FPIES in School Age Children

A place to connect families with children beyond Infancy and Toddlers, who either are still affected by FPIES or are just beginning this journey.

Last Post: Tips for starting Kindergarten 8/5/197:25 AM

1 Topic

Where are you from? Make local connections by listing your Country/State/Region here!

Last Post: Where are you from? 1/25/2211:42 AM

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Get Involved

3 Topics

Last Post: Rare Diseases Day Feb. 29, 2012 2/28/121:44 PM

14 Topics

Last Post: NAET's 7/30/1411:44 AM

2 Topics

Extended Family and Friends Connections

Last Post: Any ideas for people who "don't get it" 5/22/146:31 AM

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