Activity

Reply by Orangefox

We tried for both my FPIES kids to get formula covered by insurance. They are both breastfed but we tried supplimenting with formula...

Reply by Haley P

My sons Elecare Jr. is covered by insurance. Our GI submitted a nutrition order to a medical supply company and the medical supply...

Reply by MarkLaBoss

Hi Chris, Sorry to hear about your boy and welcome to the club. My son Marcus will be 4 in April and still complains once or twice a...

Reply by Chris

Hello, Jessica and Mark My son has been seeing Wayne Shreffler at MassGen since he was diagnosed in 2013. I’ve been very pleased. That...

Reply by Murphy

I was going to mention that too. Just be careful because all probiotics are not creates equal and they can contain inactive ingredients...

Reply by C-R

Another thing to incorporate is probiotic. That may help repopulate their gut with good bacteria. It is not only found in yogurts, but...

Reply by FPIESMOMD

Yes, culturelle is milk, soy and gluten free. At least the kids one is but I believe the adult one is as well. I put him on it myself. I...

Reply by MK

Hi, How wonderful that your son outgrew his FPIES! Thank you for the recommendation regarding the dr.! We will definitely follow up and...
MK

Reply by Murphy

Hi. I have a two boys about the ages of your girls both with FPIES. It sounds to me like your oldest is reacting to milk and soy but her...

Reply by MK

Hi! Hoping that your son has outgrown his FPIES. My son is now 26 years old. He still has FPIES to milk. Since he hasn’t had a food...
MK

Reply by Jess

Halloween: We "plant" safe treats with the neighbors we know- quinoa cheerios and pure, homemade maple syrup candy. Then, we go Trick or...

Reply by Jess

Hi, Good luck with food trialing! My 3-year-old son has FPIES (no luck with growing out of it yet- we just failed a retrial). He also...

Reply by John Saltzgiver

Are you still in Dallas area? My 7mo daughter was just diagnosed with FPIES and we are looking for others in the area?

Reply by FPIESinMI

Hi there, i am so glad your baby is doing well with her weight gain, you are going strong with breastfeeding, and that you have figured...

Reply by SG

Thanks so much Jess for your prompt responses as always. It is really scary that kids can fail a food even after a year. I guess I...

Reply by Jess

Hi, Good luck to you as you navigate this journey. I can only offer advice based on our situation: 1. We relied mostly on breastmilk at...

Reply by SG

I am new to FPIES. My baby is 7.5 months old and we had an appointment with the Pediatric Gastroenterologist last week. He said that my...

Reply by Jess

My son vomited Elecare Jr. The doctors said it couldn't possibly fail- but it did! I went back to breastfeeding for awhile. He is now...

Reply by Lauriep

Hi there, i just noticed this post in my junk box and can see you just sent it so great timing We tried all other grains with my...

Reply by MarkLaBoss

I see how old this is, so I was wondering what the result was. Our 1yr old is exhibiting all the same symptoms his older brother (3 yr...

Reply by SG

Thanks Jess for the detailed explanation. I am pretty sure after reading this that it is not reflux for my son. I will have to talk to...

Reply by SG

Danie, thank you so much for the very insightful reply! What you said makes perfect sense to me. I plan to reintroduce oats for my baby...

Reply by SG

Thank you so much, Rebekah! I live in California, so I will have to find a doctor who understands FPIES here. My son's pediatrician is...

Reply by SG

Thanks so much for your reply, Jess! What do you mean by baby food? Is it the baby food that you get from companies like earth's best,...

Reply by SG

Thank you so much for your reply and support. I will start looking up any doctors who deal with FPIES in the area. My son's pediatrician...
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
×
×
×
×