Activity

Reply by Murphy

My five year old has over 70 fails and only 13 safes. He was stuck at 12 for three years. If you don’t like what you are hearing from...

Reply by Jess

Sadly, welcome to our world. There are quite a few of us on this forum with toddlers that lose safe foods and large lists of fails (not...

Reply by Ewa

thank you for the information. Our previous reactions are only vomiting, can the ring appear without diarrhea? my son has a slightly red...

Reply by Murphy

The ring known in medical circles as the FPIES ring is literally just a bright red ring right around the anus. Some think initially that...

Reply by Ewa

Thank you for the quick reply. My son, on both salmon and egg, reacts on the 4th try, which is why our testing scheme includes 7 days of...

Reply by Murphy

Are you waiting long enough to make sure new things are really safe? Acute reactions become easy to spot once you know what you are...

Reply by Ewa

I just wonder if I should go back to breastfeeding alone, or stick with those 20 safe products and breastfeed, and try to put aside new...

Reply by Ewa

thanks Murphy for the answer, I'm a bit lost, because here on the forum I read different stories and I just do not know what to do. we...

Reply by Murphy

Is he at baseline with the 20 safe products? If he is at baseline there is no reason to cut them, baseline is baseline and baseline is...

Reply by Jess

Hi Ewa, Try not overthink everything- one day at a time! : ) Try to find a good medical professional to help work out the details-...

Reply by Izabela

Hi Ewa, I am from Poland and I have a son with FPIES. I diagnosed his condition after he had a severe reaction to baby rice ( and later...

Reply by Ewa

thank you very much Jess and Fpiesgraduate. Your messages gave me a lot of hope. Jess, you're right, I blame myself for this situation.

Reply by Fpiesgraduate

My daughter is 5 now and has no symptoms. She was also about 7-8 months when we learned about fpies and got a diagnosis based on her...

Reply by Jess

Hi Mark, Hope your kiddo is doing better this spring! Mine is- I find winter is rough for kiddos with FPIES, since viruses really mess...

Reply by Jess

Hi, I think most FPIES cases do fit the medical articles from what I heard from my doctors- they've never seen a case like ours. This...

Reply by MelissaJB

I am from Southern Michigan. My son just turned a year old and has Fpies. Diagnosed at Domino Farms U of M allegist. Did not do an IgE...

Reply by Ewa

thank you very much Jass. Your answers helped me a lot. I must admit that when I diagnosed my son and read some medical articles, I...

Reply by Jess

Hi, That is a lot of questions. : ) Every case of FPIES seems really individualized, so I can only answer from my perspective. My son is...

New Member

New Member

Reply by MarkLaBoss

Hi Jessica, Marcus sees a team over in the EGID Clinic on the main campus of Boston Children's. His doctor is Dr. Ngo and his allergist...

Reply by Jessica

Hi! We were referred to Boston children's and i was not all that happy with the doctor we saw, as every question I asked he said to come...

Reply by FPIESinMI

Hi there, We are not too far from you and see someone in Ann Arbor. U of M allergy has some great FPIES docs who also have nutritionist...

Reply by MarkLaBoss

Sorry to hear about your struggles Melissa. FPIES is so rare that alot of pediatricians don't know about it. We have received some crazy...

Reply by Jess

Well, I'm one state too far from you (WI). Hopefully, someone from Michigan sees your post and can give you a personal reference. This...

Reply by Emmy

Hi Murphy, If it turns out he has MCAS don't stress too hard (like I did), its apparently a lot more common than they originally thought...

Reply by MarkLaBoss

Also Murphy mentioned histamines in food. The doctor today mention that ground turkey may have more histamines than regular turkey meat...

Reply by MarkLaBoss

Hi Emmy et al., To my knowledge MCAS (mast cell activation syndrome) & MCAD (mast cell activation disorder) are the same or at least...

Reply by Murphy

The only process food he eats is gorilla munch and simply Tostitos plus chick pea and chickpea/red lentil pasta. He eats strawberries...

Reply by Ameador1

We totally do beans! White and black beans - never canned, I cook them. I usually soak them for one or two days first and then cook them...

Reply by Murphy

I wish we could explore a low histamine diet but my oldest only has 12 foods that are safe and without beans he would have no protein...

Reply by Ameador1

Out youngest displays histamine issues predominately (we haven’t tested yet for MCAS), but displays FPIES symptoms to corn, wuite...

Reply by Murphy

My boys 5 and 2 shows signs of histamine dumping issues but I have not made headway with doctors on it and it is in frequent though for...

Reply by Emmy

Hello Mark, Sorry to hear about your son. Can you please expand on exactly what MCAS is? Our daughter is 2.5 and still has FPIES to egg,...

Reply by Jess

I second the advice on cooking with olive oil- my son reacts to almost everything and that has been safe. My son refused to eat...

Reply by MarkLaBoss

Oh! It wasn't in a store. We Amazon almost everything from 100% coconut milk w/ no additives to organic prune packs to elecare junior.

Reply by Franny

You guys are lucky, I haven't been able to find this basic product in my stores. . . Hello Amazon!

Reply by MarkLaBoss

Sunbutter (from sunbutter.com) has this for ingredients: roasted sunflower seed, sugar and salt which is why we were so eager to try it.

Reply by FPIESinMI

Hi there! Thanks for your response! Ours both reacted to baby oatmeal after multiple exposures when mixed with breast milk. We cut them...

Reply by Franny

I reassure you that you are right . I have realized that the additives are the contaminates for many of products our little one reacts...

Reply by Franny

We didn't sleep through the night until well after a year and many tears from sleep deprivation on our end as well. . . Every night up...

Reply by Franny

I have three and only one is FPIES stricken. When you say "Oats" do you mean straight Oats or pre-concocted oatmeal products? I use to...

Reply by FPIESinMI

Our allergist told us to not sleep train if they were nursing at night (both were). He was adamant that with the extra food allergy...
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
×
×
×
×