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Reply by SG

Thanks so much Jess for your prompt responses as always. It is really scary that kids can fail a food even after a year. I guess I...

Reply by Jess

Hi, Good luck to you as you navigate this journey. I can only offer advice based on our situation: 1. We relied mostly on breastmilk at...

Reply by SG

I am new to FPIES. My baby is 7.5 months old and we had an appointment with the Pediatric Gastroenterologist last week. He said that my...

Reply by Jess

My son vomited Elecare Jr. The doctors said it couldn't possibly fail- but it did! I went back to breastfeeding for awhile. He is now...

Reply by Lauriep

Hi there, i just noticed this post in my junk box and can see you just sent it so great timing We tried all other grains with my...

Reply by MarkLaBoss

I see how old this is, so I was wondering what the result was. Our 1yr old is exhibiting all the same symptoms his older brother (3 yr...

Reply by SG

Thanks Jess for the detailed explanation. I am pretty sure after reading this that it is not reflux for my son. I will have to talk to...

Reply by SG

Danie, thank you so much for the very insightful reply! What you said makes perfect sense to me. I plan to reintroduce oats for my baby...

Reply by SG

Thank you so much, Rebekah! I live in California, so I will have to find a doctor who understands FPIES here. My son's pediatrician is...

Reply by SG

Thanks so much for your reply, Jess! What do you mean by baby food? Is it the baby food that you get from companies like earth's best,...

Reply by SG

Thank you so much for your reply and support. I will start looking up any doctors who deal with FPIES in the area. My son's pediatrician...

Reply by 2D's Mommy

My 7 year old outgrew his rice FPIES around 3 or so. He didn’t want to try it for a long time though I know that by age 5 he was able to...
2D's Mommy

Reply by SG

I forgot to mention that the throwing up episodes have always started when he is sleeping. His bed is inclined, so he does not sleep flat.

New Member

Reply by Jess

This has been a very informative post- thanks everyone! I have one 3-year-old son with 10 safe foods (up from 5 over the winter, so I...

Reply by Jess

Most of my recipes are quinoa-based. You are right- a lot of the gluten-free infant food recipes contain oats- I often experimented in...

Reply by FPIESinMI

We have been really lucky in that an ER doc at our nearest hospital (Mott Children’s at U of M) has/had a child with FPIES so we got a...

Reply by Murphy

Australia has definitely been leading research in recent years. Prior to that it was Israel. With regards to repeated messaging from...

Reply by SonyaG

Hi! My child is almost ten. She had corn (outgrew around 4) and eggs fpies. She still reacts to eggs, even in baked goods. The reaction...

Reply by MarkLaBoss

Thank you both for responding! My wife and I have adjusted to just one FPIES Monster at a time. But now that Tommy is showing similar...

Reply by FPIESinMI

Hi there, so sorry to hear you think your second little one also has it, and that you are atill strugging at two. I know some kids do...

Reply by Murphy

😂🤣😂🤣😂I told our doctors to stop giving us numbers because we heard the same things! Also when Flynn was two and half months and had...

Reply by Jessica

I bet he didn’t initially react to the rice cereal because of the breast milk... my son has rice and oats fpies and when he was given...

Reply by McKayla

Rice and corn are both fine for her.we have not tried quinoa She's had eggs also.. the only reaction she's ever had was to the...

Reply by Jess

Do you know what grains are safe for her yet? My 3-year-old son has FPIES to all grains (rice, oats, corn, never tried wheat), so we use...

Reply by MarkLaBoss

Hi Emily, I know we typed before, but don't go to CT. We are so close to Boston and BCH is a center that truly understands FPIES. Dr.

Reply by Jess

Hi, I agree with everything Murphy said. My 3-year-old son is not unlike her children- He has 10 safe foods, and he has always thrived.

Reply by Emily

Thanks, Mark and Julia! I look forward to hearing more about your experience. Sounds like our boys are close in age, and it would be...

Reply by MarkLaBoss

Hi Emily! Marcus (who is diagonsed) is 3 and Thomas who isn't diagnosed but has a few of the symptoms will be 1 on Saturday. Because our...

Reply by Emily

We are in Warwick. How old is your son? My youngest (who has not been officially diagnosed fpies, but it is starting to be discussed) is...

Reply by Emily

Thank you; did your son have vomiting with the breastmilk or just diarrhea? I am still hanging on hope that it is something milder than...

Reply by Bstewart83

We have a similar story. Our older daughter was FPIES to rice. Our son reacted through breast milk and is so much better on elecare.

Reply by Murphy

My only option! But I appreciate that. Their doctors have consistently said “I don’t know how to explain that that are thriving and...

Reply by Murphy

Meticulous journaling of every ingredient (so no eating out lol) and reaction, trial and error and time. It was a long slow process. I...

Reply by Emily

Murphy, how were you able to determine what foods they were reacting to through your breastmilk?

Reply by Murphy

What information are you looking for? I have two boys with FPIES 5 and 2. My oldest has 14 safes and my youngest 12 though he does eat...

Reply by Franny

Have you tried changing the bath soap and / or laundry soap and / or cleaning supplies? We had ridiculous eczema flare ups with food and...

Reply by Murphy

My five year old has over 70 fails and only 13 safes. He was stuck at 12 for three years. If you don’t like what you are hearing from...

Reply by Jess

Sadly, welcome to our world. There are quite a few of us on this forum with toddlers that lose safe foods and large lists of fails (not...

Reply by Ewa

thank you for the information. Our previous reactions are only vomiting, can the ring appear without diarrhea? my son has a slightly red...

Reply by Murphy

The ring known in medical circles as the FPIES ring is literally just a bright red ring right around the anus. Some think initially that...

Reply by Ewa

Thank you for the quick reply. My son, on both salmon and egg, reacts on the 4th try, which is why our testing scheme includes 7 days of...

Reply by Murphy

Are you waiting long enough to make sure new things are really safe? Acute reactions become easy to spot once you know what you are...

Reply by Ewa

I just wonder if I should go back to breastfeeding alone, or stick with those 20 safe products and breastfeed, and try to put aside new...

Reply by Ewa

thanks Murphy for the answer, I'm a bit lost, because here on the forum I read different stories and I just do not know what to do. we...

Reply by Murphy

Is he at baseline with the 20 safe products? If he is at baseline there is no reason to cut them, baseline is baseline and baseline is...
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