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Reply by Murphy

I was going to mention that too. Just be careful because all probiotics are not creates equal and they can contain inactive ingredients...

Reply by C-R

Another thing to incorporate is probiotic. That may help repopulate their gut with good bacteria. It is not only found in yogurts, but...

Reply by FPIESMOMD

Yes, culturelle is milk, soy and gluten free. At least the kids one is but I believe the adult one is as well. I put him on it myself. I...

Reply by MK

Hi, How wonderful that your son outgrew his FPIES! Thank you for the recommendation regarding the dr.! We will definitely follow up and...
MK

Reply by Murphy

Hi. I have a two boys about the ages of your girls both with FPIES. It sounds to me like your oldest is reacting to milk and soy but her...

Reply by MK

Hi! Hoping that your son has outgrown his FPIES. My son is now 26 years old. He still has FPIES to milk. Since he hasn’t had a food...
MK

Reply by Jess

Halloween: We "plant" safe treats with the neighbors we know- quinoa cheerios and pure, homemade maple syrup candy. Then, we go Trick or...

Reply by Jess

Hi, Good luck with food trialing! My 3-year-old son has FPIES (no luck with growing out of it yet- we just failed a retrial). He also...

Reply by John Saltzgiver

Are you still in Dallas area? My 7mo daughter was just diagnosed with FPIES and we are looking for others in the area?

Reply by FPIESinMI

Hi there, i am so glad your baby is doing well with her weight gain, you are going strong with breastfeeding, and that you have figured...

Reply by SG

Thanks so much Jess for your prompt responses as always. It is really scary that kids can fail a food even after a year. I guess I...

Reply by Jess

Hi, Good luck to you as you navigate this journey. I can only offer advice based on our situation: 1. We relied mostly on breastmilk at...

Reply by SG

I am new to FPIES. My baby is 7.5 months old and we had an appointment with the Pediatric Gastroenterologist last week. He said that my...

Reply by Jess

My son vomited Elecare Jr. The doctors said it couldn't possibly fail- but it did! I went back to breastfeeding for awhile. He is now...

Reply by Lauriep

Hi there, i just noticed this post in my junk box and can see you just sent it so great timing We tried all other grains with my...

Reply by MarkLaBoss

I see how old this is, so I was wondering what the result was. Our 1yr old is exhibiting all the same symptoms his older brother (3 yr...

Reply by SG

Thanks Jess for the detailed explanation. I am pretty sure after reading this that it is not reflux for my son. I will have to talk to...

Reply by SG

Danie, thank you so much for the very insightful reply! What you said makes perfect sense to me. I plan to reintroduce oats for my baby...

Reply by SG

Thank you so much, Rebekah! I live in California, so I will have to find a doctor who understands FPIES here. My son's pediatrician is...

Reply by SG

Thanks so much for your reply, Jess! What do you mean by baby food? Is it the baby food that you get from companies like earth's best,...

Reply by SG

Thank you so much for your reply and support. I will start looking up any doctors who deal with FPIES in the area. My son's pediatrician...

Reply by 2D's Mommy

My 7 year old outgrew his rice FPIES around 3 or so. He didn’t want to try it for a long time though I know that by age 5 he was able to...
2D's Mommy

Reply by SG

I forgot to mention that the throwing up episodes have always started when he is sleeping. His bed is inclined, so he does not sleep flat.

New Member

Reply by Jess

This has been a very informative post- thanks everyone! I have one 3-year-old son with 10 safe foods (up from 5 over the winter, so I...

Reply by Jess

Most of my recipes are quinoa-based. You are right- a lot of the gluten-free infant food recipes contain oats- I often experimented in...

Reply by FPIESinMI

We have been really lucky in that an ER doc at our nearest hospital (Mott Children’s at U of M) has/had a child with FPIES so we got a...

Reply by Murphy

Australia has definitely been leading research in recent years. Prior to that it was Israel. With regards to repeated messaging from...

Reply by SonyaG

Hi! My child is almost ten. She had corn (outgrew around 4) and eggs fpies. She still reacts to eggs, even in baked goods. The reaction...

Reply by MarkLaBoss

Thank you both for responding! My wife and I have adjusted to just one FPIES Monster at a time. But now that Tommy is showing similar...

Reply by FPIESinMI

Hi there, so sorry to hear you think your second little one also has it, and that you are atill strugging at two. I know some kids do...

Reply by Murphy

😂🤣😂🤣😂I told our doctors to stop giving us numbers because we heard the same things! Also when Flynn was two and half months and had...

Reply by Jessica

I bet he didn’t initially react to the rice cereal because of the breast milk... my son has rice and oats fpies and when he was given...

Reply by McKayla

Rice and corn are both fine for her.we have not tried quinoa She's had eggs also.. the only reaction she's ever had was to the...

Reply by Jess

Do you know what grains are safe for her yet? My 3-year-old son has FPIES to all grains (rice, oats, corn, never tried wheat), so we use...

Reply by MarkLaBoss

Hi Emily, I know we typed before, but don't go to CT. We are so close to Boston and BCH is a center that truly understands FPIES. Dr.

Reply by Jess

Hi, I agree with everything Murphy said. My 3-year-old son is not unlike her children- He has 10 safe foods, and he has always thrived.

Reply by Emily

Thanks, Mark and Julia! I look forward to hearing more about your experience. Sounds like our boys are close in age, and it would be...
**The FPIES Foundation does not provide medical advise, diagnosis, or treatment. ******THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION'S MEDICAL ADVISORY BOARD.********* Terms of Use: http://www.thefpiesfoundation.org/index-9.html
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