Anyone know of a good FPIES doctor in Suffolk County?
My son and I have been to many doctors with our symptoms and none have ever suggested FPIES, but it sounds exactly like what we have. Actually, we've been made fun of by doctors and screamed at. Finally found an allergist who believed what was going on, though she never came up with FPIES, but she's retired. My son needed to go on a medication for another issue and the doctor wanted an allergist to review the medication for potential allergens first. The new allergist we tried made us feel like idiots, screamed at us, and told my son to eat everything no matter how sick it made him. Obviously we didn't go back. My son's is controlled as long as he doesn't get a trace of anything he has a problem with, but mine is getting so much worse--there is something new happening. After the last experience, I've been trying to figure out what's causing it by myself, but I'd really like to get this diagnosed by a doctor. I happened across FPIES when I was looking for symptoms of GI anaphylaxis yesterday, and gosh, this is IT!! I just don't want to see a doctor that will belittle me and who I have to argue with! There's too much stress already. Thanks!