Tagged With "Doctor"

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Re: Finding an FPIES Doctor

AmandaB ·
Another question I've seen is "do we even need to see a doctor?" My personal answer is yes. Even though I was positive it was FPIES, talking to an allergist who was OUR allergist changed everything. Family members (and my husband) were totally supportive when they were supportive but questioning before. My Mom runs around sweeping like crazy when we visit b/c she's so afraid Matthew will get a hold of something. And she makes sure there is no rice in what we eat (I'm EBF and Matthew reacts...
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Re: Finding an FPIES Doctor

Jill ·
Great post, Amanda!! I'd like to just add that you can also post a question in here, and have the title say something like "Looking for a GI doctor in (location)" and someone will hopefully be able to point you in the right direction! (I love these smileys!)
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Re: Finding an FPIES Doctor

My Little Man ·
GREAT post Amanda!!
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Re: List of Allergists/GI doctors

Gabriel2010 ·
Morristown,NJ:GI Dr. Tamara Feldeman CHOP, PA: Allergist Dr.Terri Faye Brown-Whitehorn They are familiar with FPIES
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List of Allergists/GI doctors

amberdawn723 ·
Just wanted to start the Plains forum off by saying hello from Oklahoma!  Let's put this forum to good use!If you know of/have an informed allergist or gi doctor in the Plains states, please list their name and information here. Thanks!
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Finding an FPIES Doctor

AmandaB ·
Update to this post:  I started a submission form so that all the FPIES parents out there can share their doctor's info with each other.  Hopefully it can help you! http://fpies.bofferding.net/who-is-your-fpies-doctor.html So, we...
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Need help finding a doctor.

MelissaJB ·
My son is 10 months old and violently throws up if he eats rice or Formula containing cow milk protien. I am getting no where with his pediatrition here in Coldwater MI. Feeling overwhelmed and stressed and discouraged because these docs are treating me like I am crazy. And advice would be greatly appreciated.
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Re: Need help finding a doctor.

Jess ·
Well, I'm one state too far from you (WI). Hopefully, someone from Michigan sees your post and can give you a personal reference. This site does have a healthcare professional directory if you find that helpful- http://fpiesfoundation.org/fin...healthcare-provider/ . I am surprised that your son's doctor would think you are "crazy" with vomiting with rice and cow's milk- both are common triggers for FPIES. My son reacted to both of those foods. Do not be afraid to switch doctors and find...
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Re: Need help finding a doctor.

MarkLaBoss ·
Sorry to hear about your struggles Melissa. FPIES is so rare that alot of pediatricians don't know about it. We have received some crazy looks from a few docs as well. That is until Boston Children's accepted us into their program and a diagnosis came from them. Now everyone is much more helpful. Our pediatrician originally put us on Nutramigen because she thought it was just a normal cow allergy. However there are still cow proteins in Nutramigen so we had a lot of problems until Boston...
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Re: Need help finding a doctor.

FPIESinMI ·
Hi there, We are not too far from you and see someone in Ann Arbor. U of M allergy has some great FPIES docs who also have nutritionist support I believe. We got our diagnosis at Mott children’s hospital. Multiple people there told us to see Dr. Harvey Leo. He does not work for U of M but we have seen him with both our FPIES kids. I’ve really liked him but also want to warn you that I was wanting clear answers and with FPIES from our experience that’s not something you’ll get. But he did...
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Re: Need help finding a doctor.

Jessica ·
Hi! We were referred to Boston children's and i was not all that happy with the doctor we saw, as every question I asked he said to come up with a plan with our pediatrician. WHich Fpies specific doctor did you see at childrens? Thanks! Any help is appreciated!
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Re: Need help finding a doctor.

MarkLaBoss ·
Hi Jessica, Marcus sees a team over in the EGID Clinic on the main campus of Boston Children's. His doctor is Dr. Ngo and his allergist on that team is Dr. Lee who is one of the founder of the FPIES Foundation. In our view, everyone on the team has been amazing and extreemly approachable. Though our pediatrician has reached out to the team for questions on certain meds for ear infections, etc., the Boston Children's folks came up with our food trialling, medical formula, etc. Marcus just...
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Hasbro/ RI Care

Emily ·
Has anyone had experience at Hasbro? My son is a patient there, and I am struggling to feel confident about their ability to provide quality care. I think all of the doctors are great in isolation, but they seem to be on completely different pages, and I am getting different and often conflicting advice from the nutritionist, GI doctor, and allergist. I am hoping it improves now that he has an official diagnosis, but I would love to hear if anyone has had a good experience to help me rebuild...
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Re: Hasbro/ RI Care

MarkLaBoss ·
Hi Emily, I know we typed before, but don't go to CT. We are so close to Boston and BCH is a center that truly understands FPIES. Dr. John Lee out of Boston Children's is on the Board of the FPIES Foundation... and you get a whole team working toward your progress. It can take awhile to get an appointment, but once you are in the system, its like gold. Who you have as a pediatrician is also very important as not many are familiar with FPIES. Dr Judith Westrict out of Anchor is Marcus'...
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