Tagged With "safe"

Topic

If cheese and yogurt are ok, is all dairy safe?

Chris ·
Hello,  I have a just 1 yo son who reacts to oats (definitely!) and eggs (possibly- mild rxn around 7 month, but before the oats showed up- not willing to feed it to him to fin out right now!). He was exclusively breast fed and still...
Topic

Help with "safe" foods to eat while breastfeeding FPIES baby

Jenna ·
Hi everyone, So we are pretty sure our (4m old) son has FPIES, we are just waiting to meet with an allergist. While we wait it was suggestsd we try TED since i want to keep breastfeeding and so far all formulas have been a fail... Our doc doesnt know much about FPIES so was a loss as to what to suggest we eat besides avoiding our main triggers so far (rice, oats, chicken, beef, turkey, sweet potatos, bananas, lentils, dairy, soy, eggs) are all triggers we know of so far.... My question is...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

Murphy ·
Is your baby solely nursing? That will help if you are not trying things for both of you. I never did a strict TED as that can tank your milk supply. It varies from baby to baby what is a trigger. My youngest (I have two FPIES boys) reacts through my milk to dairy, soy, eggs, wheat, oats, rice, avocado, apples, pears, all stone fruit, sweet potatoes, black beans, and I feel like i’m missing something. And I have to remove all races including medical grade lactose in medication. Keeping a...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

FPIESinMI ·
So my story is a bit different as we didn’t have an FPIES diagnosis until after solids started. But we had lots of soft signs for our first and I KNEW my second had it while nursing even though the allergist cleared him. I also did not follow a TED diet for the same reason of PP of needing to keep up my milk supply. Our allergist felt the reaction my two FPIES kids had through my milk wasn’t enough to warrant possible loss of milk. In hindsight he was right but they were still reacting...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

Ameador1 ·
I tried a TED with our son while breastfeeding but we didn’t have a diagnosis yet either, so it was mostly just trial and error. I lost a lot of weight very quickly (not in a healthy way) and my milk supply really decreased. Because they can react to any food, it’s hard to do in a healthy way for you (my guy reacted to 19 different things at the time). We ended up with Alimentum for him; our younger son had FPIES reactions to fewer things and did great with goat milk with added goat...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

Jenna ·
Thanks so much to everyone that has replied already! We are solely breastfeeding right now and i plan to keep it that way until little one is 8 months, then starting to try solids then. We've had a new development to our symptoms. He had his first bloody diaper, yet i have no clue what set it off -im now just planning to avoid everything Ive eaten within the last 24hrs just to be safe untill i feel comfortable trialing things. We've tried giving him Alimentum RTF in the past, but he seems to...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

Ameador1 ·
Our son couldn’t do the RTF Alimentum either, but was ok with the powder oddly enough. He still has horrible reactions to soy (he’s 6 now). Kellymom.com has great resources for things like hidden dairy and other ingredients. We did a strictly soy-free vegan diet with him until he was three; he ate a lot of black beans and avacado. (Maybe you could try white beans?) my biggest advice would be to make sure you’re getting adequate nutrition, because if mama isn’t healthy, then you can’t be at...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

CKeefe ·
I exclusively breastfed all of my children (5 total) and three of them had FPIES. What I can pass on is the best thing I did was start from scratch.. I basically picked 3 food items and only ate those three items and for a few days if my baby reacted then I took out one item and waited a day with just the other two and went like that until I found enough foods that I could eat that he would do ok with through my breastmilk. My now 3 year old son was the worst. He was deathly allergic to all...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

TiniCher ·
Hello and sorry you and your family are having trouble. I knew within the first week that something was wrong after my daughter was born. I told my midwife that she cried and cried and her stomach seemed bloated. By the end of the first few weeks I had witnessed several mucus green poops and sometimes with blood. I happened to have three soy lattes from starbucks during that time and each night she would barely sleep and we cried and cried together. She also had a rash anywhere my milk would...
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

Jacki ·
Our son was reactive to foods from day 1. He has multiple food intolerances to this day (age 10) and we continue to keep a daily food diary. He also has FPIES. I breastfed for 2 yrs. 9 months and kept a strict food journal. I had to keep track of the bottles to know what I had ingested. It was easier to eat some of the same foods for awhile until his symptoms cleared. He too had bloody stool after I ate some cheese. Otherwise his typical stool looked like bird poop mixed with cottage cheese.
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Re: Help with "safe" foods to eat while breastfeeding FPIES baby

EC1003 ·
Hi there My DD has Fpies, but thankfully never reacted to my breastmilk. My allergist suggested we try Alfamino (super expensive but they basically build a protein from amino acids so there is nothing to react to, you can buy it on Amazon). My DD now drinks either flaxseed milk or pea protein milk, but some kids react to peas, but for you it may be a good option. We also did a food journal amd only introduced one food per day that she would eat for 2 weeks. It usually takes more than one...
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