Hey guys, just got our diagnosis today, and getting my head around it all - so good to have this website and hear from other Kiwis (I'm in Auckland too). My wee man is almost 8 months and so far dairy and rice seem to be the problems...would love to hear more from you all. Originally Posted by Skye: Originally Posted by Aucklandmum: Hi Aucklandmum, I'm from Auckland too! Haven't found any other mums from Auckland in the other online groups. My 7mo has just been diagnosed with FPIES so very...
Hey another Auckland Mum :-) we just saw Jan Sinclair today in St Heliers and she was lovely, seemed to know her stuff really well. Good luck! Originally Posted by Aucklandmum: Hi Skye So glad to find someone from Auckland. Which doctors did you see and how did they come the conclusion? We are still in the process and still with General Ped at Starship and only been told they suspect protein intolerance. Cheers
Hi there, my 8 month old was diagnosed with f pies to all grains and we currently have to stay away from carrots, bananas and peaches and he also has a milk and soy protein intolerance. I was hoping to connect with other families in our area for support and guidance. We are located in franklin virginia.
Hi I am from Elkridge, Maryland. My LO was diagnosed with FPIES at 14months, looking to connect with other moms in the area. Like most other parents with FPIES kids it has been a long stressful journey for us. Just wanted to know if any one has had from dietician locally, If yes please recommend.
Originally Posted by Aucklandmum: Hi Aucklandmum, I'm from Auckland too! Haven't found any other mums from Auckland in the other online groups. My 7mo has just been diagnosed with FPIES so very new to this and feel very alone! So happy to have found another Auckland mum! Hi All i am from Auckland, New Zealand. My LO is 20 months old. We have been on a. Long journey and still undiagnosed but her Paed suspects FPIES. Anyone else from NZ here? Thanks
Hi Skye So glad to find someone from Auckland. Which doctors did you see and how did they come the conclusion? We are still in the process and still with General Ped at Starship and only been told they suspect protein intolerance. Cheers
Shreveport, Louisiana 12 month old with no safe foods yet. Neocate formula only. On top of fpies, she seems to be developing allergies (itchy red rashes around mouth and on stomach) to foods we are trialing her on for fpies. Foods like bananas and carrots which she has had before and been prick tested negative for allergies to. Mind boggling!
Hi I'm in nz too but in Sth Island. I've posted couple of messages on here before trying to find nz fpies mums..my baby is 13mths. Fpies to egg, possibly banana, yoghurt & avocado too. Still new/early days for us x
The FPIES Foundation is excited to launch ‘The FPIES Foundation Global Registry, the first ever of its kind! The registry is a ground-breaking opportunity to directly bring families affected by FPIES together with doctors and researchers. Through this registry, we are partnering with Patient Crossroads CONNECT program, a part of the National Institutes of Health (NIH) Global Rare Disease Registry Program to provide this important tool. We are so proud to invite all of you to come and...
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