Tagged With "Sibling"

I see how old this is, so I was wondering what the result was. Our 1yr old is exhibiting all the same symptoms his older brother (3 yr old) has except we cant even seem to get the younger off breast milk and onto an elemental formula as mom is losing her supply. Thanks, Mark

Hi there, i just noticed this post in my junk box and can see you just sent it so great timing We tried all other grains with my daughter and she never reacted. We have avoided rice because of older brother so still don’t know about that one. She had an accidental exposure to barley this past year and seemed to grow out of it, no symptoms at all. My only advice is to trial foods slowly and keep it a daily exposure for a while (both of my kids reacted when there was a break in exposure, I’ve...

Thanks Laurie!

I am new to FPIES. My baby is 7.5 months old and we had an appointment with the Pediatric Gastroenterologist last week. He said that my child's symptoms do sound like FPIES. He, however, did not give us any specific instructions, and told us to keep trying new foods. When I probed him further, he asked me to try a new food for 3 days, give a break for 2-3 days and reintroduce it and give it to him for another 3 days. If he passes this test, the food is safe. After reading your post, I am...

Hi there, My almost 4 year old had classic FPIES to rice and oats. Luckily he just passed Oats in hospital this past month and we will be trialing rice shortly. I also have a 9 month old who recently reacted to Barley - she was fine on it for 6 weeks, i happened to remove it for 3 weeks and then when I reintroduced it she had a classic vomiting reaction 2 hours later. So far she has been fine on a ton of fruits and vegetables as well as peas, chicken, soft cheese and yogurt. I can't get into...

We have two children who had FPIES reactions to the same food (oats). We really restricted the diet of our second the brace/screen for FPIES so I think he could have reacted to lots more but we didn’t introduce as much. We are now expecting our third baby in May and I’m worried about starting this food journey all over again. Do other families with multiple children have FPIES with each child? were their triggers the same?

A family asks:   "My 2 year old has fpies to rice and oats. It is not an official diagnosis since her pedi hadn't even heard of it until I brought some info to her but she has text book fpies reactions to rice and oats. We never sought an...

I have 2 with completely different diets. one can eat only rice and the other only wheat. I have found most of it lies with the grains or roots. But my first diagnosed with rice, corn, oats, soy, apples, bananas, white potatoes, carrots, peaches. The other didn't have problems for years except with corn. Its scary, but once you find a safe food try expanding to others similar like butternut squash to other squashes. It can help with a bit of variety. Same goes for other reactions. If your...

My 14 month old also has Fpies to rice and oats.....I was wondering what type of a diet does your child have? Are they able to eat noodles since they are made with wheat flour? I'm too scared to do a trial with it!

it took a long time for me to try any of it. I wanted to be sure to find a company that didn't cross contaminate. I use Davinci pasta http://www.davincipasta.com/ for testing wheat. She just eats it with land o lakes butter and salt. I trial it one tiny bite at a time over 6-8 weeks. That's what the gastro dr rec. and then I also found that not stopping an item is good too. I stopped peanut butter once and then she reacted to it. Not sure why but haven't been brave enough to try it again.

Sorry, the diet for one of mine is fresh fruits like strawberries, blueberries, cherries, pears, oranges; veggies like sweet potatoes, peas, green beans, butternut squash, zucchini, yellow squash, acorn squash, broccoli, lettuce, tomatoes; and some meats like oscar meyer bacon, certain brands of ham, chicken without added solutions, beef. We only use Promise land milk, salted sweet cream land o lakes butter, cheeses, minute made OJ with calcium and D, Poly vi sol vitamins. want any more...

Thanks for the info! My daughter can eat pretty much anything that doesn't contain rice, rice flour, oats, and any other type of flour. I've just avoided all foods with flour because I'm afraid that she will react to all wheats. Thankfully she loves meat and vegetables!

I have three and only one is FPIES stricken. When you say "Oats" do you mean straight Oats or pre-concocted oatmeal products? I use to firmly believe mine had a milk / lactose intolerance and have inevitably , after rediculous home testing, found that the real culprit with "milk" is either the additives or packaging. I also ran into a reaction with something containing none of her know triggers and was only left to wonder if it was the package coating or "mixed tocopherols". I thought she...

Hi there! Thanks for your response! Ours both reacted to baby oatmeal after multiple exposures when mixed with breast milk. We cut them completely from my diet (breastfeeding) and noticed a huge different in their overall gas/discomfort and stooling. Our eldest outgrew it by 20 months (accidents exposure - a yogurt product we had aways purchased added oat cereal to it, didn’t change the label much (a tiny picture of a few oats in the corner) and I didn’t notice until she had eaten all of it.