Tagged With "Boston"

Has anyone had experience at Hasbro? My son is a patient there, and I am struggling to feel confident about their ability to provide quality care. I think all of the doctors are great in isolation, but they seem to be on completely different pages, and I am getting different and often conflicting advice from the nutritionist, GI doctor, and allergist. I am hoping it improves now that he has an official diagnosis, but I would love to hear if anyone has had a good experience to help me rebuild...

Hi all, Very grateful to have found this community. My 5-month old son has had two very scary vomit -> shock episodes that landed us in the ER: first in response to oatmeal and then to rice. He is otherwise exclusively breastfed and has had no issues feeding from me. Pediatrician knows very little about FPIES, and I can't get an appointment with a specialist until December. My questions are this: 1. Given these two significant (but limited) data points, do you feel it would be advisable...

Hi, I've been down that road . . . So sorry to hear the probable FPIES to grains and maybe more. I can only talk from my own experiences, so feel free to take it in context. It seems that EVERY FPIES case is unique- no "safe food" list is the same. My now 4-year-old son couldn't tolerate any formula for quite awhile. When you trial, if possible, I wouldn't let go of the breastfeeding just to make sure. Look out for yellow, watery stool (popcorn like) as a possible first sign of failure.

Hello, Sorry you have to be here but glad you have found us. I see you are from the Boston area and I wanted to let you know about an event coming up in Boston. It is called Boston Zoo Day, it is held every other year and put on by the Children's hospital. Many allergy organizations are available at the event, to help learn about local resources - including The FPIES Foundation! The event date is Sept. 7th (rain date of Sept.8th). I hope you can make it!

Hi Emily, I know we typed before, but don't go to CT. We are so close to Boston and BCH is a center that truly understands FPIES. Dr. John Lee out of Boston Children's is on the Board of the FPIES Foundation... and you get a whole team working toward your progress. It can take awhile to get an appointment, but once you are in the system, its like gold. Who you have as a pediatrician is also very important as not many are familiar with FPIES. Dr Judith Westrict out of Anchor is Marcus'...