Hello! My daughter was recently diagnosed with FPIES to cow's milk in all forms. Her first episode was back in July at 6 months old when we started to wean from breast milk and introduced formula (less than 2 oz). Amazingly enough, the ER staff diagnosed her with a "milk allergy" and sent us our way (we thought they were crazy at that point as she had consumed formula at 1 week old and 1 month old without reactions). Three weeks later it happened again, and that's when we started to explore other things it could be. She was finally diagnosed last month after a third episode (after blood work revealed no allergy to milk, little did we know that had nothing to do with FPIES) when we gave her mashed potatoes that contained milk and butter.
My question/concern...ever since she was born, she's been congested. Initially the answer we got was that newborns were always congested. As she got older, though, it was always "just a cold." For sure, since July, she has been constantly congested. An ear infection here and there, a few courses of antibiotics that work while she takes them, then the congestion and runny nose come back within days of being off the antibiotics. On one occasion her white blood cells were elevated as well. Her skin tests were negative for nuts, dog/cat, milk, soy.
I was never dairy free while pumping. She has also had eczema, and facial "rash" which they said was dermatitis. Could the constant congestion have anything to do with the FPIES? Or just a coincidence? She's been on Alimentum since August, and exclusively for the last week since my freezer stash of milk ran out.
I'm just trying to figure out if the poor thing has just had cold after cold after cold, or if it could have something to do with the FPIES (I know it's not a typical presentation).