So LO is EBF and has always had green, watery stools, but since he was happy and gaining, the docs said not to worry about it. But between 5 and 6 months, he stopped gaining weight. So we started him on food and discovered LO (little one) had FPIES. Delayed vomiting to: avocado, oatmeal, squash, banana, and white potato. We started fortifying his bottles with similac sensitive to try to help him gain weight- and he put on a half pound from 6 to 7 months. I cut dairy and all of his triggers from my diet and his stool looked better- still watery, but more yellow. Tried moving him to alimentum, but he refuses it. Tonight we tried giving him a similac bottle like we have been and he had an acute reaction: dry heaved repeatedly for 2 hours.
I have been to the pediatrician, GI, and allergist here in the Florida panhandle and none of them are familiar with FPIES or how to help us. I currently have appointments for an allergy skin test and an appointment with Another GI, but they can’t get us in until Dec 20th.
I’m going to try putting him on Neocate next, but I’m worried he won’t take that either 😞. He takes 15-20 oz of milk a day for an 8 hour separation, but I can only manage to pump around 12 oz.
I’m just starting to get despondent: he reacts to every single food we try, and it seems like we can’t find ANY doctors who know how to help us. He won’t take formula, and I can’t make enough milk for him to gain weight.
I just don’t know what to do. I’m crying as I sit here holding my baby. What do I do??