8 month old likely FPIES

Our dear little Charlotte is EBF and has shown symptoms of FPIES through breast milk to soy and egg since birth. Thankfully I figured out pretty quickly what the big culprits were so she is a happy healthy baby....at least she was. Now we have just started introducing foods at 6.5 months and she broke out in a rash head to toe, irritable, whiny and vomited a couple times so we cut everything out and started from scratch. We have now introduced a few things but she has had episodes (each time worse) with rice cereal and oatmeal. Last episode was really bad so it prompted me to start looking online what in the world was happening to our baby girl. She has clear signs of FPIES (which I hadn't heard of until I read online about what was happening to her). We see the allergy specialist in October but am of course nervous to try any new foods. I am supposed to be going back to work in November and whenever I try and pump I hardly get anything. Was going to try goat milk formula I bought from Holle (fully soy free!) but should I wait until I see the allergist or go ahead and try once she's back to normal? She had her last episode with oatmeal a week ago. Her face is really read and itchy and I'm not sure if its from food or dust/outdoor allergens. She scratches her face and head, arms etc and bleeds sometimes. Is that normal for FPIES? I'm assuming she has IgE allergies as well as FPIES based on her brother's allergies. 

 

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So sorry to hear about your little one's reactions! Oat and Rice cereal are really common. Baby oatmeal was our first trigger for both of our kiddos. Our allergist recommended to me while I was still EBF our oldest who had FPIES, and again with our second who also has FPIES, to "soft trial" things via my diet first to see if there were any major signs (stool issues, increase in fussiness, etc.). Neither of our children seem to have clear strong reactions to anything except oatmeal (stooling issues - most noticeable once we removed the oats actually, not during the trial), but we still avoid the most common triggers (sweet potato, soy, etc.) for a while (until after 1). If you are still BF maybe you could try goat's milk that way? 

Also, ours don't have any IgE allergies, really, and so we don't see any of the itchy/rash stuff.  Good luck!

Thanks. Some good ideas here. I eat oats every day, sometimes twice a day. It will be so hard for me to cut those out because they are filling and I'm ALWAYS hungry not being able to eat soy and eggs. I am also severely lactose intolerant so I only have a little lactose free cheese once in a while, no other dairy. Will think about trying the goat milk with some lacaid pills and see what happens there. Thanks again!

 

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