Hey guys, my name is meghan. My 8 month daughter was recently diagnosed with FPIES... I'm still shocked and stressed... how did you parents get your baby to eat anything?? the only thing that seems to work is formula and baby corn snacks..
Hi! My name is Janean, I have a little boy who is getting ready to turn 6 on Thursday. First thingS first, take a deep breath and don’t panic. I know it may not seem like it now, but this too shall pass. I remember when we first got our diagnosis he was about 10 months old, and I was googling info and reading different peoples FPIES experiences, and it all just seemed so daunting and horrible. Our doctor told me to remember that most of the people online are going to be the more severe cases because they are the ones that really need support. I wish I would have listened as that would have saved me a lot of sleepless nights. With that said we did struggle with his transitioning from milk to table food. It’s funny bc the only food that I could get him to eat was also corn based. We started with kix cereal, he wouldn’t eat it dry, so I had to soften the cereal in his milk and feed it to him one by one. That went on for a while and then he transitioned to potatoes. Basically for a while all he would eat were crunchy foods. Our allergist told us that we needed to do 2 week food trials for each new food that we introduced. I would panic every time I had to start a new one, and so I avoided them and tended to stick to the few foods that we new were safe. I will say in hindsight I wish I would have been more brave, especially with fruits and veggies, as he is still quite picky when it comes to them as we usually spend time at dinner negotiable many green beans he needs to eat to be done. In the end his only triggers were rice and oats, and he seemed to outgrow both around 5 1/2 years old. I would just keep trying new foods, let her touch them and play with them. Let her become familiar with the different textures and smells, and really just be patient and don’t panic. For what it’s worth, my oldest does not have FPIES and also preferred crunchy snacky foods until she was like 2, now she’s 11 and gets excited when I make Brussels sprouts. I know while you’re living it, you panic and worry about all the nutrients that they are missing, but I promise she will be ok. Best of luck to you in your FPIES journey! Just take one day and one breath at a time.