Hello ! I am a mommy of a 13 month old , at 10 months and three doctors later I found out my son had FPIES at 11 months old. Along with my son having FPIES he also has Von Willebrands ( bleeding disorder ) . We work with a team here in Michigan @ U of M Motts Children's Hospital. I have a GI doctor and a Allergy doctor, We went on wednesday and did some more allergy testing and it came back that on top of the FPIES my son also has a full blown Egg allergy . As soon as I saw his back swell up it hit me like a ton of bricks. The doctor was talking to me about epipens and allergy action plans and what to do if this happens or if that happens. The nurse was going over epipen usage with me and it was like charlie browns teacher was talking to me I heard NOTHING she was telling me.
I am having a hard time taking this all in , I know its not the end of the world but for me its a lot to take in at one time. I wish my little Henry could get a break he has had it hard since I was pregnant with him, he tried coming at 22 weeks, 26 weeks, 31 weeks and I had him at 34 weeks,He spent one week in the NICU , he has the bleeding disorder and now Egg allergy and FPIES.
I am one lost mommy.