Hi! I just joined the foundation...we have an almost-3 year old who was officially diagnosed with FPIES about a year ago. He started having reactions at 6 weeks old, but it took a lot for us to get some medical professionals on board.
He has reactions to 17 different things, one of which is egg. Last fall, after playing in the leaves, we noticed he would vomit about 6-8 hours later. It was like he didn't digest any food at all the whole day, and everything came up before bed. We then kept him out of the leaves and he was a lot better. Some bad poops and rashes, but nothing as severe.
It's leaf-changing time again, and he's started having reactions again. Not vomiting (yet) but horrible poops with a lot of undigested food. I know that with IgE allergies oak and egg protein have cross-reactivity; I'm curious if anyone else has had something similar happen with FPIES reactions? If so, what did you do? We can't keep him indoors, but if we can figure out something to at least calm the reactions some, I'm all ears!