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Hi! I just joined the foundation...we have an almost-3 year old who was officially diagnosed with FPIES about a year ago. He started having reactions at 6 weeks old, but it took a lot for us to get some medical professionals on board.


He has reactions to 17 different things, one of which is egg. Last fall, after playing in the leaves, we noticed he would vomit about 6-8 hours later. It was like he didn't digest any food at all the whole day, and everything came up before bed. We then kept him out of the leaves and he was a lot better. Some bad poops and rashes, but nothing as severe.


It's leaf-changing time again, and he's started having reactions again. Not vomiting (yet) but horrible poops with a lot of undigested food. I know that with IgE allergies oak and egg protein have cross-reactivity; I'm curious if anyone else has had something similar happen with FPIES reactions? If so, what did you do? We can't keep him indoors, but if we can figure out something to at least calm the reactions some, I'm all ears!




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I thought I was crazy to think that my twins could react to pollen. But, that is the ONLY change in our environment right now. My twin girl has had mucus in her diaper and having more stools than her normal and complained her tummy hurt. Twins are 2. Yesterday my son vomited his water and later he had a mucus diaper, not yet diarrhea, and he cramped last night also complaining his tummy hurt.


background info- we have one safe food and neocate jr. No internal medicines either.


I am not sure what cross reactivity means. My eldest has IgE food allergies, however only is mildly allergic to *some* trees.


We use a lot of young living essential oils to help in food trials. I just found this one and I'm thinking it might help.


"Copaiba is a powerful essential oil from South America that has traditionally been used to aid digestion and support the body's natural response to injury or irritation.* Copaiba contains the highest amounts of beta caryophyllene (55 percent) of any known essential oil."- from the young living website.

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