Last night my daughter had a reaction that she gets often. She had heart palpitations that I could feel by putting my hand anywhere on her. The only other symptoms were that she was very hot with red skin and extremely miserable with stomach cramping. Does this happen in fpies with no vomiting or dirrehea? Is this damaging her heart or other organs?
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This is not an FPIES reaction
She was diagnosed with fpies. She throws up after dairy, soy, and lactose. She also gets diarrhea and severe reflux from all other foods but grass-fed beef, coconut milk, broccoli, and grapes. Her blood test and skin tests were all negative except to corn and tree-nuts. Which caused her to get chronic diarrhea to elecare and neocate. I don't know what to do!!! She has been to the Children's Hospital in LR where she was admitted for a week, they sent us home saying keep her on elecare till she heals and we think its allergies. Later she was diagnosed with fpies by allergist. I am worried about her nutrition!! NO ONE knows what to tell me!!! Her heart has now been monitored and usually stays around 150. Her doctor said its fine and other doctors say ow that's better than it usually is. Me and my husband are dark complected she is white and bluish colored with big blue eyes. She is almost two and very smart, talking, and doing everything I ask her to do. I feel her heart race everyday, could she be almost in a state of shock everyday. She is not wanting to eat hardly anymore. If anyone reads this and knows of a doctor or a test or something I should do please HELP!!!!