Anyone have good luck getting their formula covered by insurance for FPIES? We ate the cost for our first son who is on elecare jr but when our second son was diagnosed he never took to elecare and did better on Neocate Jr. Bos Childrens has maintained that insurance should cover both children and it has gotten to expensive to just pay out of pocket.
We have Tufts of RI and they have given us some push back due to codes... supposedly we will hear more this week. I also have access to blue cross coast to coast through my work, but dont want to switch of we dont have to.
Thoughts? Anyone have success w/ coverage for formula?
Mark & Julia