Formula covered by insurance?

Anyone have good luck getting their formula covered by insurance for FPIES?  We ate the cost for our first son who is on elecare jr but when our second son was diagnosed he never took to elecare and did better on Neocate Jr.  Bos Childrens has maintained that insurance should cover both children and it has gotten to expensive to just pay out of pocket.

We have Tufts of RI and they have given us some push back due to codes... supposedly we will hear more this week.  I also have access to blue cross coast to coast through my work, but dont want to switch of we dont have to.

Thoughts? Anyone have success w/ coverage for formula?

Thanks,

Mark & Julia

Original Post

My sons Elecare Jr. is covered by insurance. Our GI submitted a nutrition order to a medical supply company and the medical supply company did the necessary paperwork (a letter of medical necessity from the GI, etc) to seek coverage from our insurance. It was a very straight forward process for us. Best of luck to you! 

We tried for both my FPIES kids to get formula covered by insurance. They are both breastfed but we tried supplimenting with formula when weight and height stalled.

Our insurance refused to cover formula because it is "over the counter," unless the patient is tube fed and formula is primary nutrition source. 

Both kids are using Kate farms pediatric peptide, although my older I dilute with ripple milk. It's expensive. I search eBay and special needs sites for people getting rid of it. 

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