I don't like to run around proclaiming to the world that Matthew has FPIES, but there have been a few times recently when I needed to explain it, and I TOTALLY botched it.
What's too much detail? What's too little? And maybe it's just me and I need to get over it, but it's annoying when people hear "food allergy" and automatically think they know the ins and outs of FPIES. Because FPIES is WAY different than most allergies. I have to stand there and politely listen as they tell me about the person they know who has a food allergy too, and that rice was a great alternative for them. RICE!!! When they say rice I feel like I just get trapped because it's the one thing I can't let go and just walk away from. And then I'm stuck giving too much detail and it spirals out of control.
I think I need a prepared statement. Not too long, not too short, that nips the "rice" comment right in the bud. I'm serious - I'll memorize it and give it whenever I get stuck in these situations. I want to educate the people around me about FPIES, but strangers and acquaintances just need a blurb. What do you say when you're in these situations?