Very grateful to have found this community. My 5-month old son has had two very scary vomit -> shock episodes that landed us in the ER: first in response to oatmeal and then to rice. He is otherwise exclusively breastfed and has had no issues feeding from me.
Pediatrician knows very little about FPIES, and I can't get an appointment with a specialist until December.
My questions are this:
1. Given these two significant (but limited) data points, do you feel it would be advisable to *try* a milk-based formula before assuming FPIES? Given the possibility that he might not have FPIES, and/or might not have a sensitivity to milk even if he does have FPIES (since every kid is different)? I am no longer producing enough breast milk for him (he eats 45 oz a day!!!)
2. If formula, what formulas have you been successful with? The two that came recommended by my pediatrician were Alimentum and Nutramigen. Guidance towards or away from either of those (or a different one!) would be so appreciated .
3. We have started to introduce fruits and veggies - so far sweet potatoes and avocados appear to be okay. Guidance on next "safe" foods would be very helpful - I am also pursuing other threads on here to get ideas.
4. Finally, any advice on navigating the complicated tapestry of allergy specialists...living in Boston and surprised by the lack of resources available without having to wait 5 months!