Just saw this: http://www.mssm.edu/research/clinical-trials/03-0096
They are apparently recruiting patients right now, and the contact info is posted if you follow the link. Mt. Sinai is an amazing hospital for FPIES kiddos-- tons of research comes out of there on FPIES. There have been several recent articles from Dr. Nowak in particular, but as you all know, Dr. Sicherer is there as well and he is a huge name in the FPIES medical community.