My Fpies journey began when my son was about 7 months after having successfully eaten solid foods for 3 weeks he had his first reaction to baby oatmeal which resulted with him in ER with constant vomiting, lethargy and hives. We were under the assumption at the time that it was a stomach bug. Two weeks later he had oatmeal again and had the same reaction; except this time he also had some severe swelling in his eye. Then a week later, he had another reaction to squash. After several visits to the allergist he came back positive to wheat, oat, squash and dairy even though he has not ever tried dairy except ingesting it through my breastmilk.
Our GI and allergist both agree that he most likely has FPIES after doing a series of intestinal tests which all came back normal. My son is 12 months old now and for the past 3 months we have been doing at home food trials to broaden his list of safe foods. At 9 months we started to supplement his diet with Elecare Jr and now that I am done breastfeeding his diet consists of Elecare Jr and a combination of the few foods he can eat. Our recent problem which landed us in the Occupational therapists office with a nutritionist was he seemed to be traumatized from his severe reactions and wanted nothing to do with solid foods except in popsicle form. He is very slow at allowing us to feed him and form of solid food, so the food trials are a very slow process to say the least.
I'm hoping someone out there could suggest a safe probiotic that is FPIES friendly (free from dairy, gluten and soy) . Our nutritionist and a lot of research I have read points to healing the intestinal flora once the reactions have calmed down in order to potentially flush out this disorder sooner than not. Has anyone had a luck in finding a safe probiotic or seen any differences in their child's health or symptoms after being on it for some time?